Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, September 14, 2012

TMAU/FMO3 Webinar 23 September 2pm EST : Professors Shephard & Phillips

Sunday 23rd September at 7pm UK time (2pm EST ... check your timezone)

Trimethylaminuria/FMO3 webinar with guest speakers :
Professor Elizabeth Shephard & Professor Ian Phillips

(veteran researchers of FMO3 enzyme and trimethylaminuria)

Hosted by : Rob Pleticha of Eurordis and

To take place in the webinar room (flashplayer needed) :

TMAU/FMO3 webinar 23rd Sept : will you attend ?

This is the 2nd of a series of webinars which are a joint initiative betweeen and TMAU advocates from the TMAU community. The webinar host and platform provider is Rob Pleticha, online patient communities manager of

This webinar :
Professor Shephard and Phillips have a long interest in TMAU and FMO3 enzyme. They are based in London universities and their work and research is based around the 2 groups of enzymes ; the cytochrome P450 enzymes and the FMO enzymes. Since FMO3 is one of the FMO group of enzymes, they have a natural interest in TMAU and have written research papers on FMO3 and TMAU . For this webinar they will provide a presentation on TMAU and FMO3 and will afterwards take questions from the audience.

About Professor Shephard :
Professor of molecular biology. Based in University College, London.
Link to university page of Professor Shephard

About Professor Phillips :
Professor of molecular biology at Queen Mary University, London
Link to university page for Professor Phillips

About Rob Pleticha and :

About the webinar room :
The webinar room is an Adobe Connect meeting room licensed to Eurordis. Enter as a Guest, no password required. It can hold up to 50 people at anytime. This means only 50 places are available at anytime. If you can watch youtube videos then you likely have the capability to access the room. You do not need to use your own name and do not need to participate (i.e. just be part of the audience). You do not need a camera or mic to be part of the audience. The audience may be able to ask questions at the end via the chat box or by possibly by audio. The webinar will be recorded and made public to view afterwards.

timezone checker

Note : The speakers are appearing under the premise the webinar will be solely about TMAU and FMO3 enzyme.

tmau webinar room
An image of the webinar room when empty


Post a Comment