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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Wednesday, November 28, 2012

UK TMAU Petition to House of Parliament

British ? Sign the UK TMAU petition
UK Petition for the attention of the UK Government Department of Works and Pensions

A young British lady has taken the initiative to start a petition regarding Trimethylaminuria (TMAU) on the official government site for UK petitions to the legislators in the UK. Presumably only British nationals are wanted to sign the petition.

The petition is to make legislators aware of the effect of having TMAU on those who are TMAU sufferers. If 100,000 signatures could be obtained, the legislators would be likely to discuss the topic in Parliament. All details of signees are kept private.

British Nationals Sign the TMAU Petition here

4 comments:

Anonymous said...

I have just signed the petition.

This is similar to a US one:

http://www.rareconnect.org/en/community/trimethylaminuria/article/petition-to-include-tmau-in-the-social-security-compassionate-allowance-list

It would be good to get a Doctor to back the UK petition.

Nov 28, 2012, 4:49:00 PM
Anonymous said...

where do we sign that US petition ??

Nov 29, 2012, 5:12:00 PM
Maria de la T., Founder and Executive Director, MEBO Research said...

The US Petition was initiated on June 12, 2011, and we obtained 454 valid signatures by March 2012. Unfortunately, this Petition became invaded by spammers to such an extend, that I was manually deleting over 100 spam signatures a day. As a result, it was closed.

I ran across another site called, WE the PEOPLE Whitehouse, https://petitions.whitehouse.gov/ where I see that people create petitions. I think it may or may not be an interesting site for us to start a new petition, but I simply have not had time to look into it. Any volunteer that would like to find out all the details about this opportunity, and to help our community initiate a Petition in this site, if indeed it is safe from spammers, please let me know. I'll welcome your volunteer work that we could coordinate together.

Thanks for your interest.
María

Nov 29, 2012, 6:12:00 PM
Maria de la T., Founder and Executive Director, MEBO Research said...

The initial MEBO Petition, http://www.meboresearch.org/petition.html was translated into Spanish and Portuguese in the MEBO website, and people from many countries in the world signed it. It's a pity spammers destroyed it. We can start a duplicate of it, so that in the end, we can still take advantage of the initial 454 signatures. Just a thought, if anyone would like to help with this cause.

Nov 29, 2012, 6:45:00 PM
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