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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Friday, January 11, 2013

The UK MRC Research Grant for Therapeutic Development


£358,000/GBP RESEARCH GRANT
FOR FIRST TWO YEARS!

Equivalent to €432,403/EUR, or $577,167/USD.
This is more than half a million US dollars!

“Therapy for the body and breath malodour disorder
Trimethylaminuria (TMAU).”

One of MEBO Research directors has received and email from a representative of the UK Medical Research Council (MRC) informing us that a group of four scientists, a government-funded renowned institution, and a private institution, Trinzyme (UK) Limited ("Trinzyme"), have been awarded £358,000/GBP for the preliminary phase (the first 2 years) of research into “Therapy for the body and breath malodour disorder Trimethylaminuria (TMAU).” To put this into perspective, this is equivalent to €432,403/EUR, or $577,167/USD. This is more than half a million US dollars! This is a potential therapeutic treatment for TMAU, under a collaborative academic-company funded grant initiative.

BUT IT IS NOT ENOUGH TO LAUNCH THE PROJECT
WE NEED TO RAISE £100,000/GBP

This is a Delivery of Patient Focused Care and Services (DPFCS) co-award with a a prominent government-funded institution and with Trinzyme (UK) Limited, a private Limited company created by the Scientist, Tamara Nicolson, PhD, for the scientific group. This means that Tamara will have to come up with funds and some 'in kind' services as the representative of the private industry. 'in kind' services are co-paid or given in goods, commodities, or services instead of money. So, even though all 4 scientists, with the help of other two very prominent physicians with TMAU patients, are involved in the research, MEBO Research is very happy to work with Tamara to raise the £100,000/GBP funds to cover the 'in kind' services and costs through Trinzyme (UK) Limited. The sooner this fund is raised, the faster the research can get underway.

More information will be forthcoming soon about Trinzyme, the company. This post is about its Founder, Tamara Nicolson. Tamara Nicolson, PhD, has significant and impressive pharmaceutical experience as a scientist, and she is now totally dedicated to this research project. She is currently dedicating all her time, effort, all her work to this project - her heart is in helping sufferers above all!

PLEASE DONATE HERE
FOR THERAPEUTIC RESEARCH FUND

http://www.indiegogo.com/odor?show_todos=true

CrowdFunding site with Indiegogo: This site has been created by one of our scientists to help raise funds for this research! You are welcome to use this or any of the other tools to donate towards this very valuable research.
http://support.indiegogo.com/entries/20440977-how-to-contribute-anonymously

YOU CAN STAND UP AND BE COUNTED ANONYMOUSLY!
Most people donate $25 to $50 dollars, pounds, euros, etc. Even if you can only donates $10/USD or £10/GBP or €10/EUR, or whatever your currency may be, this will declare to the world, that you support research into treatment of body and breath odor condition. YOU CAN STAND UP AND BE COUNTED ANONYMOUSLY!

HOW TO DONATE: Donators will have the option of donating directly to Trinzyme in US Dollars, British Pound Sterling, or most other currencies. PayPal will convert your currency automatically when you make your donation.

A POTENTIAL THERAPEUTIC TREATMENT FOR TMAU, UNDER A COLLABORATIVE ACADEMIC-COMPANY FUNDED GRANT INITIATIVE
In British Pound Sterling (GBP)








Our study will test a therapy for TMAU that will reduce the amount of urinary trimethylamine excreted.

In United States Dollars (USD)





FOR TAX EXEMPT DONATIONS

If benefactors are looking for tax exemption benefits, donations can be made to the MEBO Research, Inc., 501(c)3 US Public Charity, who will forward the funds to Trinzyme. If so, please email maria.delatorre@meboresearch.org. The MEBO Research company registered in England and Wales, is in the process of registering for Charity status in order to also be able accept tax exempt grants and donations, which will then be forwarded to Trinzyme.

Please stay tuned to this blog for future updates. You can search for updates by using the keyword, "Trinzyme LTD" in the blog's Search engine.

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization

1 comments:

Anonymous said...

is there a way to put a Facebook like thumb on this blogs entries ? I'd like to 'like' so many of them . maybe more will find them

Jan 13, 2013, 4:30:00 PM
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