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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Wednesday, January 23, 2013

'Artificial' stool can cure C Difficle, report suggests

RePOOPulate
Mention has been previosuly made in the blog of the concept of 'fecal transplantation; being used to 'cure' forms of gut dysbiosis in the colon, most anecdotally being used for treatment of stubborn Clostridium Difficile infection. A team of researchers in Canada have gone a step further and 'purified' the fecal matter so that hopefully it contains all the 'good bacteria' (probiotics) and has a much lesser chance of carrying any possible infectious organisms. It seems to be at an early stage of development but already they seem to be having good results in anecdotal cases of c.difficle bowel infection. The synthetic stool is known as RePOOPpulate.

'Fecal Body Odor' : is gut dysbiosis a factor ?
Many people with what is commonly referred to as 'fecal body odor' often feel there is a 'gut dysbiosis' connection to their own condition, though currently it is not known what would be the cause of this dysbiosis if it is a factor.
Allen-Vercoe hopes doctors will one day use the RePOOPulate concept to treat other GI conditions, such as inflammatory bowel disease, obesity and even autism by replacing abnormal gut microbial ecosystems.
Links :
Science Daily : Synthetic Stool Can Cure C. Difficile Infection, Study Suggests
Daily Mail UK :  Synthetic poo packed with probiotics
CBC Radio interview : RePOOPpulate 
'rePOOPulate' : Full paper in Microbiome Journal
CTV News


A EURORDIS and NORD Member Organization

1 comments:

Anonymous said...

its really starting to look like something ground breaking is right around the corner .

Jan 24, 2013, 6:30:00 PM
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