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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, January 23, 2013

'Artificial' stool can cure C Difficle, report suggests

Mention has been previosuly made in the blog of the concept of 'fecal transplantation; being used to 'cure' forms of gut dysbiosis in the colon, most anecdotally being used for treatment of stubborn Clostridium Difficile infection. A team of researchers in Canada have gone a step further and 'purified' the fecal matter so that hopefully it contains all the 'good bacteria' (probiotics) and has a much lesser chance of carrying any possible infectious organisms. It seems to be at an early stage of development but already they seem to be having good results in anecdotal cases of c.difficle bowel infection. The synthetic stool is known as RePOOPpulate.

'Fecal Body Odor' : is gut dysbiosis a factor ?
Many people with what is commonly referred to as 'fecal body odor' often feel there is a 'gut dysbiosis' connection to their own condition, though currently it is not known what would be the cause of this dysbiosis if it is a factor.
Allen-Vercoe hopes doctors will one day use the RePOOPulate concept to treat other GI conditions, such as inflammatory bowel disease, obesity and even autism by replacing abnormal gut microbial ecosystems.
Links :
Science Daily : Synthetic Stool Can Cure C. Difficile Infection, Study Suggests
Daily Mail UK :  Synthetic poo packed with probiotics
CBC Radio interview : RePOOPpulate 
'rePOOPulate' : Full paper in Microbiome Journal
CTV News

A EURORDIS and NORD Member Organization


Anonymous said...

its really starting to look like something ground breaking is right around the corner .

Jan 24, 2013, 6:30:00 PM
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