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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, April 24, 2013

'6 Sales' acquired Sales Represention for the Film

This would mean that the movie will be distributed, and many sufferers will be able to see it, and eventually hopefully purchase their own copy. Thanks to everyone who showed their support for this fine-quality Raising Awareness tool that has the potential of helping our international community in so many ways.


April 24, 2013

6 SALES Readies
The Boy Who Smells Like Fish
for Cannes Market after Miami Pick-up

a film by Analeine Cal y Mayor
Mexico, Canada | 2013 | 92 min. | trailer

Madrid-based 6 Sales has acquired sales representation rights for Analeine Cal y Mayor’s TheBoy Who Smells Like Fish out of the recent 30th Miami International Film Festival, where the teen comedy/drama had its world premiere at MIFF 2013, generating an enthusiastic audience response. Producers Niv Fichman (Rhombus Media, Canada) and Stacy Perskie (Redrum Films, Mexico) began negotiations in Miami with 6 Sales’ Head of Sales, Mar Abadin.
Douglas Smith, Milan Malisic, Kim Ly, Carrie-Anne Moss, Stacy Perskie, Jose Herrero, Gonzalo Vega, Don McKellar, Ariadna Gil, Zoë Kravitz, Javier Guillon, Niv Fichman, MIFF director Jaie Laplante

The massive stage at Olympia Theater’s Gusman Center for the Performing Arts was barely wide enough to welcome the cast and crew including Douglas Smith (HBO Series, “Big Love”),Zoë Kravitz (X-Men: First Class), Ariadna Gil (Pan's Labyrinth), Carrie-Anne Moss (The Matrix) and Gonzalo Vega (Lo que importa es vivir).

"Director Analeine Cal y Mayor strikes just the perfect light note for one of the big screen's first ever examinations of an unusual medical condition. The musical fantasy sequences are unbeatable!" - Jaie Laplante, MIFF Executive Director

Market Screenings in CANNES

MARK YOUR AGENDAS: 6 Sales will be holding market screenings for theThe Boy Who Smells Like Fish at Cannes Film Festival's Marché du Film on the following dates and locations:

Saturday, May 18th at 4:00 PM - Olympia 4
Sunday, May 19th at 9:30 AM - Palais H

Find 6 Sales in Cannes at the Residence du Grand Hotel, 45, La Croisette, Albatros 2nd Floor. Office Tel: +33-493-685-693

To set up a meeting, contact: Mar Abadin, Head of Sales, +34-666-517-281,

María de la Torre
Founder and Executive Director

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