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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Upcoming get-togethers


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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Wednesday, April 24, 2013

Only 2 days to book room MEBO MEETUP

CLICK HERE TO BOOK YOUR SUITE ONLINE:
MEBO Annual Conference page of Embassy Suites Memphis


http://embassysuites.hilton.com/en/es/groups/personalized/M/MEMPEES-MEB-20130517/index.jhtml?WT.mc_id=POG

There are only three days left to book your room at the Embassy Suites Memphis for the 4th MEBO Annual Meetup, featuring a sneak preview of the film, "The Boy Who Smells Like Fish". This movie is not yet out in the theaters or on DVD or Blue Ray, though they have an international distributor. They have to wait until it has been premiered in the Cannes Festival in May before it can be distributed. What a great gift the director and producers of this film have given us with allowing us to show it at our meetup for private viewing!

We will also have a three hour conference on topics such as halitosis, bromhidrosis, and TMAU, and more. The rest of the time involves a great deal of group discussions and sharing great moments together with people who share same life experiences living with this condition. We learn a great deal from each other, especially realizing that some really awesome people live with this condition!
Come join us!

Book now without advance payment, or after April 26th, you would only be able to book nonrefundable fares.

María


María de la Torre
Founder and Executive Director

  A Public Charity
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)



Or use your credit card to make your donation

A EURORDIS and NORD Member Organization 

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