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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Thursday, April 4, 2013

8 year old Tennessee girl repeatedly sent home from school for body odor

This is a news story which has hit headlines recently. A 8 year old girl is continually sent home from school due to having an offensive body odor. The mother says she bathes daily. Of course it is not possible to guess what the cause is, though metabolic malodors is one possibility that springs to mind, such as trimethylaminuria.  

News articles on the story : : School official speaks; little girl suspended 24 days for smelling bad
Daily Mail UK : Schoolgirl, eight, sent home from class more than 20 times because of 'foul odour'
Washington Times : 8-year-old Tenn. girl suspended from school 7 times for body odor

Relevant contact details :
Here are contact details should anyone wish to contact the relevant authorities about the subject in this case
Ron Dykes : Office of the director of schools, Washington County
Washington County Schools board members


Anonymous said...

WOW....thank you for the post. It shows there are more people affected than I ever thought, and of many different age groups.

Apr 5, 2013, 10:20:00 AM
Anonymous said...

Home schooling, social services, neglect, I agree perhaps to ensure the safety of a child investigation may be warrented, but a huge thank you to everyone bringing light to unexplained body odors, to those who may think their techniques can eliviate our anxety, to those in ssi who think we can be gainfully employed please see all points of view and the complexity of this condition. I have completed my first bucket list and my second bucket list is open ended and i continue to do things on my bcket list. I go out and experience life, but that child can not control the scool kicking her out anymore than I can control an employer firing me or refusing to hire me.

Apr 5, 2013, 10:33:00 AM
Maria de la Torre, Founder and Executive Director, MEBO Research said...

This behavior from the education system is a true measure of the extreme degree if total ignorance of the physical and psychological needs of children who suffer from a medical condition resulting in uncontrollable body/breath odor.

The burden of educating society falls on each and every member of our international community around the world. MEBO Research only offers all sufferers the opportunity to raise awareness from the comforts of our respective homes, but it is up to each sufferer to take action and copy and paste and send the email...

We must not only think of our selves, just take a look at the faces of our children! They too could have inherited, or their children could have inherited this...

Apr 5, 2013, 11:03:00 AM
Anonymous said...

Oh no....I read the comments from the news article online..the family is poor. Low income neighborhood. The mother does not have teeth so its obvious she is not hygenic and used meth. Also distgusting inbreed and sleeping with animals..also a cotton ball causing decay in the sinuses etc....shows psychologists and doctors annd ssi how people are judged based on appearances and economic status. These steryotypes are disabling and life crippling for suffers. Look at pictures of me and where I live and non of those steryotypes apply to me. That little girl does not deserve steryotypical judgements and iggnorant cruel people involved...I will email everyone you listed!!!!!!! Be productive and try to help the girl or stay out of it..........unfortunately we share the world with hurtfull people. I will email everyone.

Apr 5, 2013, 12:27:00 PM
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