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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, April 17, 2013

Watch the movie at the Memphis MEBO Annual Meetup !

MEBO Annual Conference page of Embassy Suites Memphis

Join me to share this experience together!

What greater way to watch this
than in the company of other sufferers!

The movie, The Boy Who Smells Like Fish, will be shown on Saturday night, May 18th, at our 4th MEBO Research Annual Meetup at the Embassy Suites Memphis! Even though this film is not yet premiered in theaters anywhere in the world other than Film Festivals, The Director, Analeine Cal y Mayor and two Producers, Niv Fishman and Stacey Perskie have been so kind and generous as to allow us to show the movie at this year’s meetup. We are most grateful to them for such generosity and consideration. MEBO Research has also been authorized by them to use the movie in the future to fundraise for research grants. We cannot yet copy or sell the movie, but they will let us know of its progression after it premieres at the Cannes Film Festival also in May.


9:00am: We meet at the complimentary, full cooked-to-order breakfast. Complimentary breakfast is normally served on Saturdays between 7:30am and 10:30am.

10:00am to 1:00pm: We meet at the Presidential Suite for our Conference. The featured topics this year will be Halitosis, Bromhidrosis, and TMAU. Information provided by experts followed by a Q & A and discussion session after each presentation. More information will soon be forthcoming.

2:00pm: Lunch at the Barbecue Festival Downtown Memphis. Memphis in May World Champion Barbecue Cooking Contest 2013.

5:00pm to 7:00pm: Manger’s Reception featuring complimentary alcoholic and non-alcoholic beverages and hors d’oeuvres.

7:00pm: Dinner (location to be determined)

9:30 or 10:00pm: Meet at the Presidential Suite to watch the 1 1/2 hour movie, The Boy Who Smells Like Fish.

For anyone interested in booking their room, we have less than eight Suites left in the MEBO group allocation. Our MEBO group rate will be available only for the next 10 days, and reservations must be made no later than April 26, 2013. Reservations requested after this date will be accepted based upon availability. Normally, comparable rates (other than our group rate) are instant purchase and non-refundable. The main benefit of our rate is that you can guarantee your room on your credit card, but you won’t be charged until the moment you check out after your stay. Please keep in mind that a hold may be placed on your card account for the full anticipated amount to be owed to the hotel, including estimated incidentals, through your date of check-out and such hold may not be released for 72 hours from the date of check-out or longer at the discretion of your card issuer. Please reconfirm with the hotel reservations department at 901.684.1777.

Cancellation Policy
If you wish to cancel, please do so 24 hours prior to arrival to avoid cancellation penalties.


OPTION 1: Book it directly online at,

Personalized Group Page - MEBO Annual Conference

Group Name:MEBO Annual Conference
Group Code:MEB
Hotel Name:Embassy Suites Memphis
Hotel Address:1022 South Shady Grove Road
Memphis, Tennessee
Phone Number:901.684.1777

OPTION 2: Please call the hotel directly at,


and ask for the MEBO Research rate of $142/night*

for either one King bed or two double beds.

Share a room with someone and cut your cost in half, and each person will still enjoy the complimentary extras below!

This rate is also extended up to three days prior to the 17th and three days after the 19th (May 14th through May 22nd), but only if booked prior to April 26, 2013.

Room rates include :

  • Complimentary daily full breakfast per person,
  • Complimentary nightly 2-hour Manager's Reception, serving free unlimited alcoholic and non-alcoholic beverages and snacks,
  • Complimentary Memphis International Airport shuttle,
  • Free self-parking,
  • All 2-room Memphis hotel suites with refrigerator, coffeemaker and microwave,
  • Located just minutes to Graceland and downtown Memphis.

María de la Torre
Founder and Executive Director

A Public Charity
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