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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, May 16, 2013

Who is MEBO?

Who is MEBO? There are a few sufferers who have told me that sufferers who just discovered our community don't know who MEBO is. MEBO is a sufferer founded 501(c)3 Public Charity registered in the US, England and Wales. the 10 Directors (5 in US and 5 in UK) offer their volunteer services, as do other sufferers and experts. There are a few experts in multiple countries who donate their time and work pro-bono to educate and guide us.

What is MEBO's Mission? To promote and initiate research into ALL TYPES of body and breath odor conditions to obtain a greater understanding of the causes, for the experts to arrive at a targeted therapy for each type of condition that results in body odor and halitosis. Since years go by with no government funding for research, MEBO has launched a raising awareness campaign to solicit research grant funding. In addition, instead of waiting around at the mercy of those who can fund our research (but don't), MEBO has initiated, and will continue to initiate, a few sufferer-funded research projects, under the supervision of experts and the MEBO Institutional Review Board to protect the rights of participants.

Basically, MEBO is the only organization in the world that focuses a great deal of attention and research efforts to understand the cause(s) of body and breath odor conditions of the 70+% of sufferers who get negative results on their TMAU Test.

Basically, MEBO is the only organization in the world that focuses a great deal of attention... on the 70+% of sufferers who get negative results on their TMAU Test.

MEBO also strives to compile scientific and medical information, such as articles in professional journals and books, and post them in the MEBO Blog, in addition to webinars, interviews, powerpoint presentations, and handouts given to MEBO expressly for our community by experts around the world that support our cause. Some of these can be found in the latest MEBO blog post,
Agenda for the 4th Annual MEBO Conference 2013.


María de la Torre
Founder and Executive Director

  A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

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A EURORDIS and NORD Member Organization 


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