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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Friday, June 14, 2013

Fifth Year Anniversary of this Blog



Below is the stats overview of the number of page views (posts viewed) in the MEBO Blog since each respective post was made public, according to Blogger.

Pageviews since Blogger Stats 
commenced on July 1, 2010 :  

533,717

MEBO Blog was created on April 2008
Currently have 1,274 posts

451 Published Comments

TOP POST / DATE WRITTEN / COMMENTS


PAGEVIEWS

Aug 4, 2009,       7 comments
11,043
Jan 29, 2011,       2 comments
8,993
Nov 22, 2008,      5 comments
6,045
Sep 2, 2009
2,750
Dec 8, 2012
2,657
Aug 6, 2012
2,050
Oct 3, 2012,       5 comments
1,429
Jan 8, 2012
1,149
Sep 27, 2008
1,100


Pageviews by top 10 Countries
Since July 1, 2010


Entry
Pageviews
United States
247,390
United Kingdom
79,368
Russia
16,637
Canada
15,463
China
15,132
Germany
14,939
Ukraine
12,940
Australia
11,415
France
9,775
Sweden
3,288

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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A EURORDIS and NORD Member Organization

2 comments:

Anonymous said...

wow . surprised that Russia is number 3 !

Jun 15, 2013, 5:34:00 PM
Maria de la Torre said...

Yes, and unfortunately, the main barrier in communication is language and culture, particularly regarding the diet of each culture. We can mostly translate a discussion of the foods that should not be eaten, IF WE ONLY KNOW THE CAUSE, as is the problem everywhere. But, especially in the case of TMAU, as most of us know, all sufferers want to know what we CAN eat. Each culture has it's own typical foods, and we don't know the sulfur, choline, or gluten content of many of them, etc.

I don't even know where a sufferer can do the TMAU test outside of Europe, US, New Zealand, and a few of the countries noted in the MEBO Blog page, International TMAU Testing Labs, http://www.bloodbornebodyodorandhalitosis.com/p/international-tmau-testing-labs.html. I am frequently at a loos of what to suggest that they do.

We managed to help a sufferer in Russia do the TMAU test with Nigel Manning, but it was not easy, and it was costly. I forgot the details, but I think she traveled to Europe.

MEBO would love to start research and testing programs in many countries around the world for people living in that area. That's easier said than done.

Jun 15, 2013, 6:12:00 PM
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