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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Saturday, June 15, 2013

Gene Patents Eliminated by US Supreme Court & Public database for Hereditary Gene Mutations

As advocates for research and treatment for Rare Diseases, our MEBO international community is very happy to hear the great news of a US Supreme Court Decision. This has revolutionized research propelling it forward to truly provide patients with faster results, by eliminating gene patents and announcing the launch of a public database for hereditary gene mutations!

INTERNATIONAL INITIATIVE APPLAUDS THE SUPREME COURT DECISION ELIMINATING GENE PATENTS AND ANNOUNCES THE LAUNCH OF A PUBLIC DATABASE FOR HEREDITARY GENE MUTATIONS



The Supreme Court's landmark ruling that human genes are not patentable has set the stage for a new era of access to genetic information.
posted by Mark in Genetic Alliance

With this landmark Supreme Court decision, we have an opportunity to pull together and take back our data – as patients, we have the power to change the way our information is shared. I am dedicated to help others free the data and pledge to share my information to help improve patient care and advance the treatment of these diseases that have affected my family for generations.”
Joanna Rudnick, advocate for patients with BRCA mutation
(risk for breast and ovarian cancer) and filmmaker

We know that this will be very well received news by the international research community. Great news!


María

María de la Torre
Founder and Executive Director

A Public Charity
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www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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