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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Sunday, June 16, 2013

Update: July Meet Up Support Group Raleigh, Durham area


The Raleigh/Durham
Food and Diet Support Group


New Meet Up Group In Raleigh/Durham and Surrounding Area.


Date/Time:

July 14, 2013 at 2pm EST.


Location:

Barnes & Noble front entrance
Traingle Town Center
5959 Traigle Town Blvd.
Raleigh NC 27616
919-792-2140

Please send a email to onrichar@hotmail.com if you interested in joining the group or with any questions.

See you all there!

"O"


One of the most discussed topic in the forums, facebook, emails I receive, and MEBO sites is diet - diet for TMAU sufferers and for non-TMAU sufferers. This is an excellent opportunity to carry out this type of discussion. Come join in!


We were very fortunate to have an attendee who had never been to one of MEBO’s annual conference.  She is a sufferer and is very much involved with a group called Food Addicts in Recovery Anonymous (FA), and her contribution to the group discussion on the proper selection of foods and self-control in responsible dieting enriched the quality of information exchanged. Anyone interested in learning more about eating habits and self-control, please visit the FA link, http://www.foodaddicts.org/ and/or email onrichar@gmail.com.

ALL ARE INVITED!



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www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
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A EURORDIS and NORD Member Organization 

2 comments:

Unknown said...

Maria are you going to be there?

Jun 20, 2013, 9:31:00 AM
Maria de la Torre, Founder and Executive Director, MEBO Research said...

I would love to be there, but I think I'm going to have to join the group in spirit. I have too many family concerns to tend to that prohibit me from leaving.

I have full confidence in O's ability to conduct the group in a very instrumental manner. She conducted part of our MEBO Conference in Memphis and was very very effective and resourceful regarding dieting and food addictions that we develop. Through her own personal experience, she has learned techniques that helps control symptoms, including those of diabetes, inflammation, and now, odor conditions. I really support this initiative very much, and hope that once the core group is established in the RDU area, we can expand the project online to reach all sufferers around the world.

Jun 20, 2013, 3:11:00 PM
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