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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, June 5, 2013

Survey: Probiotics - bacterial and/or yeast?

Please participate in Survey below
Click on icon below for updated stats results.

With articles such as the above mentioned, it appears that greater deal of attention and importance is given to the use and the research of probiotics. As Dr. Robin Lachmann, MD, tells us in his webinar,

"We can intervene again to try to change the balance of the bacteria in the gut away from those that produce TMA with hopefully the bacteria that don’t. This is where the role of probiotics comes in, with probiotic bacteria preparations, like Bifidobacterium, acidopholus, lactobacillus, and we know that they don’t produce TMA, so at this point after the antibiotics, when we have a gap in the gut flora, we get people to actually take probiotics, and then those probiotics will quickly fill up that space that we’ve made. Once the glass [gut] is full again, there isn’t room for the other bacteria to divide so quickly with luck, we’ll be able to get a long-lasting alteration in the gut flora so that there are fewer of the TMA-producing bacteria. And if at the same time you are following a diet that is low in choline, you are feeding them less choline, and these two approaches, the diet and probiotics, will work together to bring down the levels of TMA, or at least we hope that they will." (17:12)

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