Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, October 14, 2013

MEBO is nominated for WEGO Best in Show: Blog

Yesterday, MEBO received another email from WEGO Health, which states that MEBO has been nominated for Best in Show: Blog in the Third Annual WEGO Health Activist Awards. It is indeed an honor simply to have been nominated by this organization of health activists who make up this free social network committed to empower health activists to help others, Below is a copy of this email, in which everyone in our community is invited to nominate and recognize our health hero:

From: WEGO Health
Date: Sun, Oct 13, 2013 at 6:29 PM
Subject: Congratulations! You've been nominated for Best in Show: Blog

Dear Mebo,

Congratulations! You've been nominated for Best in Show: Blog in the Third Annual WEGO Health Activist Awards.

The WEGO Health Activist Awards program was created to recognize and honor those making a difference in the online health community — and someone who follows you has taken the time to thank you for all you do. There will be many ways for nominees to get involved in the program so you'll be hearing from us again soon with more details. In the meantime, help us recognize as many Health Activists as possible by nominating your own health hero:

Nominate Now

Want to get involved but not sure who to nominate? Share the WEGO Health Activist Awards on Facebook, Twitter, or your own blog and encourage your followers to recognize the other leaders they value most. Try using this quick blurb on Twitter or Facebook to get started:

Take a moment to recognize your Health Activists Heroes by nominating them for the #HAAwards from @wegohealth:

Congratulations again and thank you for helping us to recognize all of the great work being done in the online health community. If you have any questions, please email us directly at

The WEGO Health Team

WEGO Health | 180 Lincoln St, Fifth Floor | Boston, MA 02111
This email was sent to:
To opt out of future WEGO Health mailings, click here


On September 9, 2013, MEBO wrote a blog post, WEGO Health, Empowering Health Activists, when we received an email from Susan Mees of the WEGO Health Team, in which she invites us to become involved in their discussions ans speaking opportunities on health issues. WEGO's goal is to bring together bloggers, tweeters, and active community leaders to discuss their health condition, their favorite resources, and ways to help raise awareness and share information.

Our goal is to equip our network with opportunities designed for the active contributor, relevant content, powerful educational resources and shareable interactive media. We hope that the bloggers, tweeters, and community leaders that we call Health Activists will find inspiration, strength and support here.

María de la Torre
Founder and Executive Director

A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

A EURORDIS and NORD Member Organization 


Post a Comment