Dr Mercedes Serrano is a child neurologist at Hospital San Joan de Deu, Barcelona who understands the importance of the internet as a means of communication about rare disorders. She moderates the website www.guiametabolica.org which is in Spanish but there is a google translate button on each page so that you can get a decent translation in most languages. So far the Trimethylaminuria forum has 89 members and Dr Serrano answers questions personally when she can. She recently gave a webinar in Spanish about TMAU in the rareconnect.org webinar platform but this does not appear to be archived (yet).
Here is the guiametabolica.org TMAU forum
Here is the guiametabolica.org TMAU home page
Use the google translate button at the top of the pages for a decent translation
Below is a video Dr Serrano did for rareconnect.org about the guiametabolica website
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