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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER
10% OFF
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BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

Friday, November 15, 2013

Spanish TMAU forum moderated by a Dr with an interest in metabolic disorders

Dr Mercedes Serrano is a child neurologist at Hospital San Joan de Deu, Barcelona who understands the importance of the internet as a means of communication about rare disorders. She moderates the website www.guiametabolica.org which is in Spanish but there is a google translate button on each page so that you can get a decent translation in most languages. So far the Trimethylaminuria forum has 89 members and Dr Serrano answers questions personally when she can. She recently gave a webinar in Spanish about TMAU in the rareconnect.org webinar platform but this does not appear to be archived (yet).

Here is the guiametabolica.org TMAU forum
Here is the guiametabolica.org TMAU home page
Use the google translate button at the top of the pages for a decent translation

Below is a video Dr Serrano did for rareconnect.org about the guiametabolica website

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