Rob Pleticha (RareConnect), Karen (MEBO PR Director), and I would like to ask you to please sign Cheryl Field's (MEBO Community Service Director) petition in support of her efforts to raise awareness of the needs of persons with disability in the job application process. United we can make our rights and needs be known.
It is a human right for us to work if we choose to and to contribute positively to the society of which we are a part. A metabolic disorder should not inhibit our career progressions!! Karen
María de la TorreFounder and Executive Director
A Public Charity
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)
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2 comments:
First of all I would like to thank Maria for all her fantastic efforts with this site.
I am a life-long TMAU sufferer, I first started getting negative comments at the age of 11 years when I started secondary school, I am now in my 50's. I have 2 children and they both have this condition eventhough they have different fathers. I strongly believe that awareness should start in secondary school because this would both inform our future doctors, teachers and politicians, as well as keeping victimised school children from taking their own lives.
I know first hand how this devastating condition can isolate and destroy a life. The whole idea of 'living' a life is; to make friends, get a job and find a life partner but when this condition prevents us from being in someone's 'personal space' for fear of offending, being in that personal space can lead to rejection and humiliation. Not being able to live a life but merely existing is not enough.
Information packs together with a detailed letter should be sent to every head teacher of every secondary school, suggesting that this should be addressed in science classes, the cause of body odour is often attributed to poor hygeine because of bacteria build-up but if children were aware of a medical reason being the cause then sufferers would be able to get a test and the bullies would think twice about how they persecute the afflicted.
Hi! I'm a bromhidrosis sufferer for almost 10yrs. I'm 23yo now, girl, and working. My life is totally devastated everyday especially at work. People make fun of me, don't go near me and always sniff whenever I'm around. A lot of times I've attempted suicide. I actually wanna die. Everyday I hope to actually be dead. This blog enlightens me up and I'm looking forward to reading and knowing more information on treating bromhidrosis. I'm begging..... I hope you can help us out especially with information. I'm thinking of having surgery but I'm scared it might not work. God bless all the people behind MEBO. YOU ARE ALL AMAZING. I SALUTE YOU.