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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Friday, November 22, 2013

TMAU Research Grant posted in RCUK Gateway to Research

The "Therapy for the body and Breath malodour disorder Trimethylaminuria (TMAU)" has been posted by the UK Medical Research Council in the Research Councils Gateway To Research Site. You can also access this award information by going to the RCUK Gateway to Research site, and typing in the award code, MR/K015494/1. Please feel free to read all about it, including the Abstract, Technical Summary, and Planned Impact of this research as registered with the Medical Research Council, UK.

Our scientists do not wish for sufferers to put themselves or their families in a difficult economic situation to donate to this fund.
We have been announcing this grant since December 2012, and have been fundraising to support it with the Trinzyme Project. After discussing our fundraising efforts with our Scientific Advisor and Principal Investigator of this research project, Professor Elizabeth Shephard, I would like to relay what she and another scientist have told me. Our scientists do not wish for sufferers to put themselves or their families in a difficult economic situation to donate to this fund. In regards to this research project, the suffer's needs and well-being come first above all others.

Having said this, it is MEBO's aim to fundraise for large donations, and we hope to launch an aggressive fundraising project in 2014. As we have been saying all along, the more we can delay involving investments from pharmaceuticals, the lower the cost to sufferers this therapeutic will be. If you are interested in being part of this fundraising project, please come with your ideas and volunteer work efforts so that we can organize a strong campaign.

Needless to say, I know our whole international community is elated with excitement over this incredible opportunity to lead normal, healthy lives. It will take a few years for this therapeutic to come to fruition and to become available to sufferers, but it is well without our grasp in the immediate future. Now, all we need to do is to work hard to keep the cost down.


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María de la Torre
Founder and Executive Director

A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

A EURORDIS and NORD Member Organization 


Maria de la T., Founder and Executive Director, MEBO Research said...

Looking for translators to write this in multiple languages in facebook, the MEBO Spanish and Portuguese Blogs and in RareConnect. Please feel free to translate and post in your respective sites, or to copy and paste into any and all sites. The point is to get this information out to the public. Thanks to everyone for their enthusiasm and support.

Nov 22, 2013, 12:31:00 PM
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