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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, January 5, 2014

Mercy of Circumstance & Disarray


Mercy of Circumstance,
Mercy Circumstance,

Spinning round and around,
a mouse on a wheel.
A dizzying ride,
this reality is real.

Gasping for breath,
a fish stranded on land.
The tide is to blame,
demise was not planned.

Perpetually grounded,
a bird with clipped wings.
Eyes in the sky,
The sadness it brings.

The mouse stops running,
wheel comes to a halt.
The dizziness within,
the mouse is at fault.

The fish flops in the sand;
the ocean caused this strife.
Another tide washes ashore,
invigorating the fish with new life.

The bird ruffles its feathers,
Nobody now clips its wings.
Happily away flies the bird,
Only in flight the bird sings.
Benjamin Rimmer

my mind is in disarray
to the effect of being
affected by things
i don't quite understand
the moon shines in the dark
but never in the light
the sun shines in the day
but never at night
fleeing to my inner
thoughts i wonder
who asked you in the first place
haha i laugh because they
do not know within me
is within me
outside me is upon me
in my mind i am disturbed
blatant and outrageously flabbergasted
at the things that come out of my mouth
once again who asked you i asked
myself and what was the answer......that bitch crazy......
Photos by Maria


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