AND EXECUTIVE DIRECTOR

Since I am not available or qualified to give one-on-one counseling to sufferers, and since MEBO consists of a fully volunteer staff of sufferers and family members, there are no experts available to offer telephone consultations or available to answer large volumes of emails. Therefore, MEBO has gone to great lengths to interviews experts, work with RareConnect to hold webinars given by experts, and to gather literature on Trimethylaminuria and other body and breath odor conditions found in professional journals to post about them in the MEBO Blogs.
In addition, I have put in place a secret, totally private online support group, which consists of a few hundred members that is thriving very well. No one outside the group can see participants’ names, usernames, or pseudonyms associated with MEBO or anything written in this site. In this group, there are sufferers who have many years of experience fine-tuning their respective odor-management techniques, who are very willing to give excellent testimonial to each other and to new members. The topics most discussed in this group are the expert-prescribed odor management protocol and recommendations, and how to face the challenges of school environment and the workplace among other topics. I’ll be happy to invite anyone interested to this group for help and guidance. If interested in being invited, please notify maria@meboresearch.org.
REFERENCES:
- Please see the list of International TMAU Test Labs that may or may not provide patient consultation.
- International Healthcare Providers Listing and Reviews provided by sufferers.
- Raising Awareness: WTXL, Tallahassee
María

Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

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