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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, April 23, 2014

Society to Improve Diagnosis in Medicine


Society to Improve Diagnosis in Medicine
Better Outcomes Through Better Diagnosis

MEBO's Scientific Director and member of MEBO's Institutional Review Board, Dr. Irene Gabashvili, PhD, has informed us of an organization, the Society to Improve Diagnosis in Medicine (SIDM), that can help us raise awareness in the medical community. Dr. Gabashvili tells us that in case anyone is interested in sharing your symptoms with medical librarians, we can participate in a pilot program entitled, "Expert HealthSearch."

Raise Awareness: Participate in survey
The Society to Improve Diagnosis in Medicine (SIDM) is committed to ensuring that diagnosis is accurate, timely, efficient and safe. Through a pilot program entitled, “Expert HealthSearch,” SIDM is seeking to connect patients with medical librarians who can help them find evidence-based information about their symptoms.

We are interested in talking to patients who have seen a doctor, nurse practitioner, or physician's assistant about their symptoms in the last 6 months but whose symptoms are not improving. We prefer to interview patients who are at least one month into the diagnostic journey. All personal health information will be kept confidential.

Participants in the program will receive an evidence-based report on the symptoms that are troubling them. In return, participants must agree to complete a follow-up survey to assess how this information has affected their subsequent diagnosis or recommendations for treatment.

If you would like to be part of this pilot program, please complete this brief online survey: Patients who meet the criteria for inclusion will be contacted by a medical librarian to discuss their symptoms in more detail. Enrollment in this free, the initial program is limited.

If you have any questions, please do not hesitate to contact

Expert Health Search (Feb. 2014) Survey

Please tell us a little about you.

All sufferers from around the world are encouraged to participate in this survey as we join together to Raise Awareness so that someday, any sufferer can go to their physician and receive proper and prompt treatment.

Additional posts and PowerPoint presentation written by Dr. Irene Gabashvili for the MEBO Community:

'Microbes and Us' Slide presentation by Dr. Irene Gabashvili for MEBO Nashville Conference 2010

The Road to Ammonia

Food and Smells

Body Odor and Skin Bacteria

What's that fatty odor?


María de la Torre
Founder and Executive Director

A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

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