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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Wednesday, April 23, 2014

Society to Improve Diagnosis in Medicine

RAISING AWARENESS
IN THE
MEDICAL COMMUNITY


Society to Improve Diagnosis in Medicine
Better Outcomes Through Better Diagnosis

MEBO's Scientific Director and member of MEBO's Institutional Review Board, Dr. Irene Gabashvili, PhD, has informed us of an organization, the Society to Improve Diagnosis in Medicine (SIDM), that can help us raise awareness in the medical community. Dr. Gabashvili tells us that in case anyone is interested in sharing your symptoms with medical librarians, we can participate in a pilot program entitled, "Expert HealthSearch."


Raise Awareness: Participate in survey
The Society to Improve Diagnosis in Medicine (SIDM) is committed to ensuring that diagnosis is accurate, timely, efficient and safe. Through a pilot program entitled, “Expert HealthSearch,” SIDM is seeking to connect patients with medical librarians who can help them find evidence-based information about their symptoms.

We are interested in talking to patients who have seen a doctor, nurse practitioner, or physician's assistant about their symptoms in the last 6 months but whose symptoms are not improving. We prefer to interview patients who are at least one month into the diagnostic journey. All personal health information will be kept confidential.

Participants in the program will receive an evidence-based report on the symptoms that are troubling them. In return, participants must agree to complete a follow-up survey to assess how this information has affected their subsequent diagnosis or recommendations for treatment.

If you would like to be part of this pilot program, please complete this brief online survey: https://www.surveymonkey.com/s/ZDPLG3D. Patients who meet the criteria for inclusion will be contacted by a medical librarian to discuss their symptoms in more detail. Enrollment in this free, the initial program is limited.

If you have any questions, please do not hesitate to contact info@improvediagnosis.org

Expert Health Search (Feb. 2014) Survey
www.surveymonkey.com

Please tell us a little about you.

All sufferers from around the world are encouraged to participate in this survey as we join together to Raise Awareness so that someday, any sufferer can go to their physician and receive proper and prompt treatment.

Additional posts and PowerPoint presentation written by Dr. Irene Gabashvili for the MEBO Community:

'Microbes and Us' Slide presentation by Dr. Irene Gabashvili for MEBO Nashville Conference 2010


The Road to Ammonia


Food and Smells


Body Odor and Skin Bacteria


What's that fatty odor?


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)


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