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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, June 23, 2014


I have consulted with various medical doctors, i.e., an internist, gynecologist, and podiatrists, about fungal and bacterial infections in general. These doctors, without exception, have explained to me that different microbial species restrict access by other species to their population. They tell me that when one species population grows, it limits the growth and population of the other microbial species that form part of the intestinal flora or any other part of the body.

When I had an infected ingrown toenail, my podiatrist prescribed oral antibiotics and an antibiotic ointment to put on the nail and surrounding skin. After the infection healed, I asked the doctor if I should continue using the cream to prevent more bacterial infections. He explained that if I would continue to use the antibacterial cream, it would then eventually produce a fungal infection, since eliminating the bacterial population would create a void for other microorganisms to populate. In other words, the various species of microorganisms in the gut keep each other in check.

Human beings, animals, and microbes are territorialistic, and we feel threatened if a stranger enters into our territory o inside our home without permission. For this reason, great wars have been fought. The winner invades the conquered territory and all its inhabitants. Microbes behave the same. For this reason, we need to not only eliminate the odor producing microbe, but we need to be very concerned with which other microbe we are replacing it.

This explanation helps us better understand the theories discussed in our community regarding the cause of odor.

Some people are convinced that the cause is a candida overgrowth, while others have received positive TMAU tests results, indicating that they high levels of odorous trimethylamine (TMA) are caused by bacteria. According to the explanation given to me by numerous doctors, it is not probable to have enough overgrowth of both, bacteria AND fungi in the intestines for both to be contributors to body odor and/or halitosis. There are sufferers who want to follow both protocols, the TMAU odor-management protocol and the candida diet at the same time. First of all, it is not necessary to do this because the probability is that one does not suffer from both, and second, it would be a very unhealthy diet that eliminates too many nutrients for a long time.

For the reasons above stated, it is first necessary to determine whether the cause of odor is fungal or bacterial with the appropriate tests performed by qualified professionals whenever possible. In addition, sufferers should not take antibiotics for a prolonged period of time because it creates a void in the intestines and consequently other odor producing microbes and possibly life-threatening pathogens may invade the empty space. Aside from this danger, it simply makes no sense to create a microbial void in the intestines in an effort to control odor only for it to eventually be naturally filled by other odor-producing organisms.

It is recommended by experts that antibiotics unless under medical supervision, which may not permit antibiotic treatment without it being determined to be clinically necessary. For this reason, it is also not recommended for someone to follow a prolonged diet intended to reduce fungi (candida) without first determining precisely what the cause of odor is.
It’s important to not leave a void after reducing a microbial community in the intestines, and therefore, replacement with probiotics is recommended. Probiotics consist of live organisms that have important physiological functions in the intestines. By populating the empty space, probiotics keep other microbes within their well-established boundaries

Candida infection pictures

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