Genetic Testing and Reimbursement

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Genes in Life was created by Genetic Alliance, a nonprofit organization, founded in 1986 and based in Washington, DC. Genetic Alliance is a health advocacy organization committed to transforming health through genetics and works to connect consumers to the smart services they need to make informed decisions about their health and healthcare. Genetic Alliance's network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations. 


Genes for Life Testing & Services, has an excellent article on their website on 'Reimbursement for Genetic Testing.' It also discusses the 'Direct-to-consumer genetic testing' option, and 'After Diagnosis, Find information and support' section.

Genetic testing may be necessary for many reasons, including for preventive, reproductive, or life planning measures.You may be reluctant to have these tests done because your insurance provider might not cover the costs and you don’t want to pay out-of-pocket. Ultimately, genetic testing can be very important in figuring out a health condition, and it’s important for you to do everything that you can to maximize your health.

The Affordable Care Act (ACA), a law that was passed in 2010, defines certain health services as "Essential Health Benefits ," which must be covered by all health plans. What is actually covered may vary by state as some states already require coverage of the federally mandated services.

They also discuss the following:

1. Testing for genetic conditions:
• Carrier screening
• Diagnostic testing
• Direct-to-consumer genetic testing
• Newborn screening
• Pharmacogenomic testing
• Predictive testing
• Pregnancy related screening
• Reimbursement for Genetic Testing
2. Whole Genome Sequencing
• Privacy and Progress in Whole Genome Sequencing
3. Working with healthcare professionals
• Geneticists
• Genetic counselors
• Primary care providers
• Specialists

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María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

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