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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, August 5, 2014

Support the MEBO Supplements for Africa Drive

Diaspora

SUPPORT THE MEBO 
SUPPLEMENTS FOR AFRICA DRIVE

A member of the MEBO community has donated a painting he made, which depicts the ostracism, expulsion, displacement, banishment, exclusion, and basic exile that odor conditions force sufferers into, and thus, its name Diaspora. This talented painter wishes to stay anonymous and has donated Diaspora to be the image for our Supplements for Africa Drive.

PLEASE DONATE!

SUPPLEMENTS FOR AFRICA DRIVE
MEBO US PAYPAL ACCOUNT


***************************

SUPPLEMENTS FOR AFRICA DRIVE
MEBO UK PAYPAL ACCOUNT



Thanking everyone in advance for your donations.


If anyone wishes to share paintings made by sufferers or pictures taken by sufferers that depicts the "spirit of sufferers" or of typical home town scenes, countryside, etc. of a sufferer, please feel free to email it to maria@meboresearch.org.


We could then use it to promote any of the MEBO projects. However, please note that in an effort to protect the privacy of sufferers and their family and friends, it is preferred that they are not in the picture.



A message from Karen, MEBO Public Relations Director.


Hi all,

Maria of MEBO has set up a system which enables sufferers in some African countries to access supplements which may help them to control their odours. Any small donation to this project via Paypal would be very much appreciated. It must be unbearable to read about hopeful methods of management and then not have access to them!
PLEASE DONATE to this fantastic initiative if you can!!

It must be unbearable to read about hopeful methods of management and then not have access to them!
Have a good summer and best wishes to all!

Karen

Karen
Public Relations Director
Raising Awareness Activist


A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)


SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online
at no extra cost to you.
MEBO gets small commission from Amazon.


Use your credit card to make your donation to MEBO.

A EURORDIS and NORD Member Organization 

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