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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Thursday, September 11, 2014

UK most popular mid-morning TV show looking for TMAU volunteer

UK TV Channel : ITV
Programme : This Morning
Looking for TMAU diagnosed person to appear on show
This would be the 4th TMAU person on the show

UK ITV show 'This Morning' is looking for a TMAU diagnosed person to appear on the show. They have contacted the tmau.org.uk website to ask for a volunteer. This would be the 4th TMAU person to appear on the show, following on from Claire, Karen and Ellie. Raising awareness of metabolic malodor is a vital need for the metabolic malodor community, as both the public and  researchers are still mostly unaware of the concept.

The email to the tmau.org.uk owner said the following :

We are looking for a case study of someone who has been diagnosed with trimethylaminuria and can talk on live TV about how it affects their life. We arrange all travel and can pay a fee. It will be for a Tuesday show over the next few weeks. It would be brilliant if you could help. Thanks!""

adrian.butler@itv.com

Adrian Butler | Newsdesk journalist, This Morning | ITV plc 6th Floor/Studio 8 This
Morning London Television Centre Upper Ground | London | SE1 9LT |
Tel: 020 715 74153

Link to post on tmau.org.uk forum




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2 comments:

Steph D said...

I wish I had the confidence to do this! Props to the ladies who bares their souls and inner most struggle for the purpose of awareness...

Sep 12, 2014, 10:08:00 PM
Anonymous said...

That young singer should do it.

Sep 16, 2014, 6:07:00 PM
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