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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Sunday, November 23, 2014

Shop through MEBO's Amazon link

Replace your saved Amazon link with the Amazon MEBO link


Amazon USA
Most people probably have the Amazon Homepage saved in their browser bookmarks/favorites.

If you replace your saved Amazon Homepage link with the Amazon MEBO Homepage link, MEBO will then get around 1-5% of your purchase cost AT NO EXTRA COST TO YOU. No personal info is shared with MEBO apart from listing what is bought (probably so that affiliates can see what sells best). MEBO do not know who bought what or any personal or financial info.

USA
If you shop at Amazon USA, you would replace your current saved Amazon link with this link
http://www.amazon.com/?&tag=mri0a-20

Anything brought through this link will mean 1-5% commission for MEBO

UK
If you shop at Amazon UK, you would replace your current saved Amazon link with this link
http://www.amazon.co.uk/?&tag=mere0d-21

Canada
Save/Use this link
http://www.amazon.ca/?tag=wwwbloodborne-20

Spain
Save/Use this link
http://www.amazon.es/?&tag=mere07-21

Other countries
If you have an Amazon in another country we can look to see if they have an affiliate program MEBO can join

Email MEBO
If you have any enquiries about this program feel free to email us.

Other ways to purchase via the MEBO Amazon affiliate program
Basically you can go through any Amazon links or banners on this blog or the MEBO website. They all have the MEBO Amazon affiliate tags.

A great way to raise money
This is a win/win way to raise money. It costs nothing to the buyer, and MEBO will get a small % of the cost. Current totals raised are kept in the Amazon box in the sidebar.

Use your credit card to make your donation to MEBO.

3 comments:

Anonymous said...

Does the money go towards the research?

Nov 24, 2014, 5:32:00 PM
Maria de la Torre said...

The small amount of income that MEBO receives from the Amazon commission goes towards the MEBO expenses, such as the annual filings and fees in the US and UK, website monthly fees, renewal of GoDaddy email domains, supplies for TMAU Tests and unforeseen Customs fees for international shipments, and for MEBO annual meetup and conferences.

Donations made to the MEBO For Trinzyme Project is to support the UK TMAU Therapeutic Research headed by Dr. Elizabeth Shephard. You can use the link on the right sidebar of this blog for donations to this research project.

Since MEBO is a Charity operated by a wholly volunteer staff in the UK, US, and Brazil, all donations made out to MEBO and the proceeds obtained through Amazon commissions go to cover minimal operational expenses so that MEBO may continue to exist to carry out its Mission of initiating and supporting research in hopes that all sufferers around the world will have within their grasp the wherewithal to control their breath and body odor symptoms. It is because of supporters like you that we are able to move forward towards this aim. Thank you all very much for your support.

Nov 25, 2014, 1:35:00 AM
Anonymous said...

Thank you for the information.In the future I will use the links that you have provided us with. I look for updates and hopes on this website and its all thanks to you so thank you.

Nov 25, 2014, 9:26:00 PM
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