Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Labels

March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Sunday, November 30, 2014

Use MEBO sites to click on MEBO Amazon links

To use MEBO Amazon links, click on the links or banners on public sites such as this blog
Unfortunately, if you save the links in your browser MEBO will not get commission on purchases 


Amazon USA
In the previous post, it was thought that clicking on MEBO Amazon links anywhere would be enough for MEBO to get commission on any purchases. However there were 37 purchases via the MEBO link this month, and commission was only given in 5.

After inquiring about this, it seems that only MEBO-Amazon links or banners on any MEBO site qualify for commission (it seems. We will need to check regarding emails). So for anyone wishing for MEBO to get commission on purchases via Amazon, please use the Amazon banners or links on the blog or any posted in the MEBO Facebook page (for example). The tagged links can also be posted on any public site.

Thank you to everyone who uses the links

Currrent MEBO Amazon USA total raised : $440.46

Amazon USA : You can use these links on any MEBO site (or click through links on this blog)
http://www.amazon.com/?&tag=mri0a-20

Amazon UK
http://www.amazon.co.uk/?&tag=mere0d-21

Amazon Canada
http://www.amazon.ca/?tag=wwwbloodborne-20

Amazon Spain
http://www.amazon.es/?&tag=mere07-21

Please do not save the links in your browser. Use the links on public sites.

Use your credit card to make your donation to MEBO.

0 comments:

Post a Comment