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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Wednesday, May 13, 2015

New TMAU urine tester at Sheffield UK Hospital

Nigel Manning retires

Sheffield Children's Hospital in the UK has for around 20 years been one of the few TMAU urine test labs in the world, due to the endeavor of lead Metabolic Clinical Scientist in their lab, Nigel Manning

Nigel for a long-time has been a friend to the community and MEBO. It was Nigel who set up the testing process for the TMAU urine test at Sheffield on his own initiative. An interview he kindly gave to this blog a few years ago can be read here : Interview with Nigel Manning

Today Sheffield also tests the FMO3 gene as a DNA test, one of the few clinical hospitals to do so in the world.

Our community and MEBO thank Nigel for all his help to our community and to MEBO. You could say he was a pioneer in enabling TMAU testing. Someday the TMAU test will likely be done at every metabolic testing lab in every 'metabolic testing' hospital worldwide, but today it is still only a handful.

New 'TMAU urine test' overseer at Sheffield : Joanne Croft

Happily the tradition of TMAU urine testing at Sheffield will continue under the instruction of the new Metabolic Lead Clinical Scientist : Joanne Croft.

Joanne Croft
Clinical Scientist - Metabolic Lead
Dept. of Clinical Chemistry
Sheffield Children's Hospital
Western Bank
Sheffield
S10 2TH

We welcome Joanne to 'our world' and thank Sheffield for keeping up the TMAU testing tradition

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