Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, May 13, 2015

New TMAU urine tester at Sheffield UK Hospital

Nigel Manning retires

Sheffield Children's Hospital in the UK has for around 20 years been one of the few TMAU urine test labs in the world, due to the endeavor of lead Metabolic Clinical Scientist in their lab, Nigel Manning

Nigel for a long-time has been a friend to the community and MEBO. It was Nigel who set up the testing process for the TMAU urine test at Sheffield on his own initiative. An interview he kindly gave to this blog a few years ago can be read here : Interview with Nigel Manning

Today Sheffield also tests the FMO3 gene as a DNA test, one of the few clinical hospitals to do so in the world.

Our community and MEBO thank Nigel for all his help to our community and to MEBO. You could say he was a pioneer in enabling TMAU testing. Someday the TMAU test will likely be done at every metabolic testing lab in every 'metabolic testing' hospital worldwide, but today it is still only a handful.

New 'TMAU urine test' overseer at Sheffield : Joanne Croft

Happily the tradition of TMAU urine testing at Sheffield will continue under the instruction of the new Metabolic Lead Clinical Scientist : Joanne Croft.

Joanne Croft
Clinical Scientist - Metabolic Lead
Dept. of Clinical Chemistry
Sheffield Children's Hospital
Western Bank
S10 2TH

We welcome Joanne to 'our world' and thank Sheffield for keeping up the TMAU testing tradition

Subscribe for latest posts : Enter your email address:

Delivered by FeedBurner


Post a Comment