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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Friday, June 5, 2015

Webinar 8 June : IGEM 2014 project leader Jake Wintermute webinar
Monday 8 June
6pm Paris time

Webinar title :
Synthetic Biology and Microbiome Engineering approaches for Trimethylaminuria (TMAU)

Guest Speaker :
Jake Wintermute, Ph.D.
Postdoctoral Researcher
Paris Descartes University

in the Webinar Room : click here
to check your local time : google '6pm Paris time'

Jake is a biologist at the Centre de Recherches Interdisciplinaires in Paris. In the summer of 2014, Jake challenged a team of undergraduates to use genetic engineering to improve human health and well being. The result was "The Smell of Us," a collection of new biotechnologies to control body odors by engineering the bacteria that live on human skin. The team's work was awarded prizes for "Best New Application" and "Best Art and Design" in an international genetic engineering competition can be seen online (

In this webinar, Jake will discuss his group's work-in-progress on TMAU. The primary pathology of TMAU is the appearance of trimethylamine (TMA) in the sweat. Many microbes are capable of metabolically neutralizing TMA, including some that occur naturally on human skin. Genetic modification may enhance this ability, creating microbial products to attenuate the symptoms of TMAU. Jake will discuss his scientific progress and the specific challenges of developing a genetically modified organism for human use.

Webinar will be free and recorded Webinar Room

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Anonymous said...

Can you please record this and put it on youtube?

Jun 3, 2015, 6:19:00 AM
blogcontributor2 said...

Yes it will be recorded
Are you unable to make it ?

Jun 3, 2015, 10:01:00 AM
Anonymous said...

Hello, I'm looking for a doctor that could help me with this condition,
I live in New York, Thanks

Jun 8, 2015, 4:36:00 PM
Anonymous said...

Is this available to watch anywhere?

Jun 15, 2015, 5:30:00 AM
blogcontributor2 said...

It was recorded by rareconnect but there seems to be a technical issue to overcome. I am sure they will upload it at some point. We will keep you informed and of course post the video on the blog.

Jun 15, 2015, 8:40:00 AM
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