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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Wednesday, August 19, 2015

London Meet up : 5th Sept Saturday 1pm onwards

London Malodor Meet-up
Saturday 5th September, 1pm onwards
Jubilee Gardens, Belvedere Road, London ... next to The London Eye
Everyone welcome

Karen, MEBO UK Public Relations Director , has arranged well-attended malodor meet-ups around the London area previously, and now another one is scheduled for September 5th. Here is a message on the next meetup by Karen :

Hi,

In the  past, our friend scientist42 arranged meet ups every September at the Thames Festival. I think we should carry on this tradition. It's a great event and, this year, the festival is even bigger, and there should be something for everyone:
Link : Timeout 'things to do' at Thames Festival

So, on Saturday 5th September from 1pm onwards, we can meet in the (Jubilee) gardens, Belvedere Road, next to the London Eye.

I will be on the grassy banks of Jubilee Gardens facing the River Thames, next to the toilets with the glass doors, found at the foot of the staircase leading down from the Jubilee Bridge. If it's raining, I will dash for cover underneath that bridge/staircase!

Please ring me if you can't see us (don't text - my text service is a bit dodgy 'cause i need a new phone)

Karen
karen.james@meboresearch.org


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A EURORDIS and NORD Member Organization

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