It's amazing how people with other types of rare diseases go through a very similar experience before getting their diagnosis, and the feelings are very similar. Maddie is a young girl who learned that there is great satisfaction in re-directing her illness towards helping others and raising awareness.
María de la Torre
Founder and Executive Director
A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)
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