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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, March 2, 2016

Gut Microbiota & MEBO Metabolomic Research Study

An interesting and easy to understand explanation of the role of gut microbiota, how the foods we eat affect our gut microflora no matter what part of the earth we live in. Giulia Enders talks about studies linking gut microflora to obesity, auto-immune diseases, and the long-term consequences of the use of antibiotics on gut microbiota compasition and diseases.

Unfortunately, no mention was made about gut microbiota and malodor conditions, most probably because there has not been research on this. The new groundbreaking MEBO Microbolomic Research Study is all about understanding the sufferer' gut microflora in relation to odor and treatment.

Approved Exploratory Research Study

Metabolomic Profiling of Urine Samples
for the Identification of Novel Biomarkers and Mechanisms
in the Diagnosis and Management of Malodor Associated with
Metabolic Inefficiencies
(ID: 201505010014MEBO/ NCT02683876)

Information on this research carried out by U.S. Principal Investigator Irene Gabashvili, PhD, MEBO Scientific Director, and collaborating registered Principal Investigator, David Whishart, PhD, of the Metabolomics Innovation Centre (MIC) of the University of Alberta, Edmonton, Canada, can be found on the Clinical Trials website at,

See post in this blog, Microbes and us, dated February 17, 2010

View more presentations from Aurametrix.

María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)

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