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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Wednesday, August 24, 2016

Raising Awareness in India


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Anonymous said...

I wish that any research labs that have a potential cure sitting around would offer it to this rare disease community in some fashion. Recently, I learned that the Cleveland Heart Lab has DMB formulations patented that would help the TMAU community, but chose not to use it just now. So, as they're sitting on a patent,
it may be hard for other researchers to use that knowledge for our benefit.

I know it's good manners to be patient and passive with research labs, but gosh darn it, I wonder if they are aware of the enormous need out there.

Aug 29, 2016, 6:20:00 PM
blogcontributor2 said...

Cleveland Clinic are working on a TMA blocker pill. We don't know how long it will take. It will be an over-the-counter pill made by P&G. They won't be using DMB as they will be using something stronger. DMB is a natural compound so can't be patented.

So you can be safe in knowing that work is going ahead on a tma-blocker pill and it will come to market as it is for heart disease protection.

Aug 29, 2016, 7:21:00 PM
Anonymous said...

Actually, there is a patent, not for DMB itself , but for the discovery that DMB will block the formation of TMAO. It is viewable online.

Aug 31, 2016, 1:48:00 AM
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