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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, January 22, 2017

Time change 8:00pm MEBO 2017 Meetup/Conference

Due to popular request,
the Meetup/Conference time has been changed
to 8:00 p.m.
1418 Ocean Drive
South Beach
Miami Beach, FL 33139, USA
305 534 9334

Normally, MEBO's Annual Meetups/Conferences are held on Saturdays at noon, which normally does not interfere with attendee's work schedule. However, since some attendees of the 2017 meetup are continuing on to a 5 day cruise from the Port of Miami to Jamaica and Grand Cayman, the meetup for 2017 has been schedule on a Friday instead of Saturday. I had failed to note that many would be working around noon on Friday, the originally scheduled time, or may have difficulty getting a flight to arrive on time. For this reason, it has been changed to 8:00 p.m on Friday, March 31, 2017.

Anyone interested in decorating
the beautiful Rooftop Terrace
and/or organizing our
MEBO Happy Hour Meetup/Conference
please let me know,
This schedule change will actually work out better for numerous reasons:
  1. It will allow everyone, including those who are coming with their family, to have fun family time at the beach together with the conference attendees, if you like.
  2. Shade from the sun under the hot Miami sun at the rooftop terrace might be a problem at noon, whereas at 8:00 p.m., the sun is setting, the sky turns into many beautiful shades of orange and yellow, and the breeze is much cooler.
  3. We can make this a Happy Hour Meetup/Conference. Those who like alcoholic beverages can get them at the bar in the lobby or anyone interested can bring a bottle of red wine, red grape juice, tea bags or whatever you like. I believe there will be a coffee machine in my room that we can use.
  4. Anyone interested in bringing healthy munchies is welcome to do so.

🏝Anyone interested in decorating
the beautiful Rooftop Terrace
and/or organizing our
MEBO Happy Hour Meetup/Conference
please let me know,

María de la Torre
Founder and Executive Director

A Public Charity
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