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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, February 9, 2018

MEBO Annual Conference & Meetup, APR 13-16th

MEBO will be holding this year’s annual conference on Saturday, April 14th, and the meetup throughout the weekend in beautiful Savannah, Georgia. The location of the conference is yet to be announced. Many of us will be staying at the Fairfield Marriott on Abercorn Street off I-95 South.

The address is:

Fairfield Inn & Suites
By Marriott
17027 Abercorn St
Savannah, Ga 31419
912 925-5050

Location of the conference and possible other accommodations to be announced.

As the conference agenda is being drawn up, the theme of this event will be “Research”. The precise agenda is pending as we wait for the All of Us determination of whether NIH funding will be awarded for the research proposal, “Could Precision Medicine Initiative Reduce Social Inequality”, put forth by MEBO’s Scientific Director, Irene Gabashvili, PhD. If it is approved, supplies volunteer participants may need will hopefully be available to give out during the conference. Please let All of Us know you support this research award by clicking here to vote. Your vote could actually make a difference of whether we are granted this NIH research support.

Some of the topics to be discussed in the conference will be the following:

1. Preliminary results of MEBO's Clinical Trials by Irene Gabashvili, MEBO's Scientific Director

Preliminary results of the following two MEBO Clinical Trials:

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

2. Preliminary results of Citizen Research Group from Germany results

We will also be discussing the preliminary results shared with us by Danny Kunz and his research group in Germany, who have asked MEBO for volunteers to participate in their gut microbiome research. Ongoing discussion on their research can be found in their blog, Body Odor Research Blog.

3. More information about the All of Us research application put forth by MEBO’s Scientific Director, Irene Gabashvili, PhD.

Could Precision Medicine Initiative Reduce Social Inequality”, Below is a brief description of the study Irene is applying for:
  1. Urinary ‘biome’: 16S
  2. Bacterial DNA
  3. Virome
  4. Metabalome
  5. Gut, skin and oral microbiome could also be helpful, at least in some cases
  • Whole Exomic Sequencing (WES): At specific time anchored to the clinical event
  • Diet: Food diary
  • Perceived outcomes – patient: Natural language processing of notes
  • Perceived outcomes – surgeon.

If you have not voted and commented yet expressing your support for funding consideration by the National Institutes of Health, All of Us initiative, please do so now at this site. You can do so anonymously. To vote, click here.

4. Provide research/test kits (pending research approval)

MEBO has been working with some labs in an effort to launch testing research possibilities. This is still a work in progress that I hope will be in place in time for the conference, but it is not yet guaranteed.

More information to follow to be announced in this blog about the MEBO Conference agenda. Please stay tuned.


María de la Torre
Founder and Executive Director

A Public Charity
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