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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
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Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Thursday, March 22, 2018

MEBO Database: A message from Karen

MEBO's Public Relations Director in the UK, Karen James, is working on expanding the MEBO Database of sufferers who may be interested in participating in research and testing. This database consists of sufferers who have already done their TMAU test, or any other diagnostic test ordered by their health care provider in pursuit of better understanding and management of odor condition.

At this time, we ask those who would like to be included in this database to be willing to share those results only when and if it is necessary for a particular study. As announced in this blog, there are currently two active research projects in place right now, so anyone wishing to share their results with MEBO to support this research could do so, as Karen mentions below.

Your privacy is of the utmost importance for MEBO Research, 
and all measures will be taken to protect it.

Below is a message from Karen:

MEBO Research have a database of people who tested for TMAU in any lab in the world and participated in the three MEBO Clinical Trials via their organisation. This list could be very useful for when scientists are interested in recruiting research participants at short notice. We are hoping that such an opportunity could arise very soon, and we want to be ready for it by having an extended list of potential volunteers with an odour problem. If you would like to be added to the MEBO database, which holds records of odour sufferers from around the world, then please send your details to maria.delatorre@meboresearch.org or karen.james@meboresearch.org. If you don't have a positive diagnosis, you can still send in your details and they can be recorded for future use.

Information needed is:
1. NAME as it appears on the test results forms,
2. Date of birth for identification purposes (helpful when names are common)
3. Address, including country, phone number, and email address. The address and phone number would facilitate the process of shipping kits if necessary.
4. Test type, i.e., TMAU test with NHS, MEBO Volatile Organic Compounds in Alveolar Breath Study, Biolab Study, tests noting hormonal imbalance or gut disorders, etc. (as many different types of tests they think may be significant to consider for an odor condition including, but not limited to TMAU).
5. TEST RESULTS

optional information:
Odor type and whether constant or intermittent
Triggers ( hormonal changes, such as menstruation, thyroid problems, trigger foods)
If positive for TMAU, did the TMAU diet work?
Do people experience allergic reactions to you?

Please be a proactive part of the MEBO Mission. Be part of the solution to the suffering those afflicted with these conditions are going through!

Thanking you all in advance and thanking Karen or her most influential work,

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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A EURORDIS and NORD Member Organization

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