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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Saturday, April 7, 2018

Location change ONLY for MEBO Conference 14APR18

The location of the MEBO Conference in Savannah, Ga., to be held at 12:00 noon thru 5:00p.m. on Saturday, 14 April 2018 had to be changed to a larger conference room due to a higher expected attendance than originally anticipated.

 MEBO will still have the Suite available at the Fairfield Inn & Suites for those who wish to meetup there throughout the weekend, other than during the conference, to share quality time together in greater privacy than the hotel lobby would provide.

The actual conference will be held at the following location from 12:00 noon to 5:00pm on Saturday, April 14th.

NEW CONFERENCE LOCATION April 14, 2018, 12:00 noon thru 5:00pm. Appetizers will be served. You can also bring your own food and/or drinks, if you like.


Courtyard Savannah Midtown
By Marriott
6703 Abercorn Street
Savannah, Ga 31405
912 354 7878

TRANSPORTATION FROM HOTELS TO THE CONFERENCE:

Anyone staying at the Fairfield or Clarion hotels or anywhere nearby who want to share a ride to the conference, can meet at either hotel at 11:00 a.m. to leave together to the conference. If you have driven to the meetup, please help with the carpool effort to the conference as well. (more information to follow)

MEETUP PLACE (OTHER THAN CONFERENCE) LOCATION


For the Meetup time together other than the 5 hour conference, MEBO will have the King Suite at the Fairfield Inn & Suites, where we could meet in a more private setting in addition to the more open to the public area of the lobby.

Fairfield Inn & Suites
By Marriott
17027 Abercorn St
Savannah, Ga 31419
912 925-5050

For Accommodations information please see the following post in this blog:
http://www.meboblog.com/2018/03/accommodations-agenda-mebo-conference.html


I'm so glad that there is much enthusiasm in our community about this meetup, and I look forward to meeting everyone at this event!


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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A EURORDIS and NORD Member Organization

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