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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Friday, August 10, 2018

TMAU Petition to CDCP : Change.org

Karen is a longtime MEBO Volunteer Helper.
She wishes to remind us of a petition on change.org for TMAU, started by Rere.

Change.org petition.
About : AWARENESS FOR TMAU 
To :  Centers for Disease Control and Prevention
Begun : 2016

Link to TMAU Petition

The petition link is also on the Blog Sidebar. >>>>
It has 500+ signees, again suggesting TMAU is not rare.


Rere talking about her TMAU petition on Change.org


Petitions as an awareness tool.

Petitions would seem a very useful tool for an unknown disorder such as METABOLIC BODY ODOR.
They show how many identify with this disorder.

A petition can go to anyone (many petitions are better than none), and over time it may become clear who best to target and the aim(s) :
People could start petitions to :
Politicians, Political bodies, Government agencies, Academic bodies etc.

Change.org seems to be the most popular and established world petition site.
There are also petition sites to country parliaments, such as UK petition site 

MEBO will be happy to promote any petitions 
start a petition on Change.org

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