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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Thursday, March 21, 2019

Upcoming Conference in Netherlands and Belgium April 2019

In collaboration with a small group of TMAU sufferers, the VKS has organized the first official national conference for people dealing with odor conditions, including TMAU. Two guest speakers will give a presentation, Professor Ron Wevers, PhD., expert in the field of genetically determined odor conditions, Radboud UMC "Malodour", and a dietician (To be announced).

DATE: Saturday, April 13, 2019
TIME: 2:00 pm to 5:00 pm
LOCATION: Accommodatie Domstad, Koningsbergerstraat 9, 3531AJ Utrecht
LANGUAGE: The conference will be in Dutch
People can sign up for the conference by sending me an email at
Enrollment has to be as soon as possible, before the end of this month (March).


2:00 pm - 2:20 pm: Walk-in with coffee and tea
2:20 pm - 2:30 pm: Welcome by Crissan Rosalia, Health Psychologist, MSc., MEBO Mental Health Director
2:30 pm - 3:30 pm: Presentation on "Malodour" by Professor Dr. Ron Weber, Radboud University Medical Center
3:30 pm - 4:00 pm: Presentation by dietitian (to be announced)
4:00 pm. - 4:30 pm: Discussion / Exchange experiences

People can sign up for the conference by sending me an email at
Enrollment has to be as soon as possible, before the end of this month (March).
We are most grateful to Crissan Rosalia for reaching out to experts representing our community in hopes to establish a coordinated effort to find answers, solutions, and some day, a cure.

Some information on Dr. Wevers' work:

"Wevers : New gene suspect for METABOLIC MALODOR : SELENBP1"

Pubmed : SELENBP1 abstract paper

Dr Wevers webpage

Media links on the story :
Medical Xpress
Science Daily
UCLA press release

María de la Torre
Founder and Executive Director

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Anonymous said...


Is it possible to live stream for those of us who can't attend?


Apr 4, 2019, 9:45:00 PM
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