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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Wednesday, July 10, 2019

Crissan's Mental Health Column: Breaking the patterns of shame

Click to see article

JULY 2019
MEBO Mental Health Column
MEBO Mental Health Director

Breaking the patterns of shame

In her April Mental Health Column post, Moving from Denial, Anger and Depression to acceptance and self-acceptance, Crissan describes very real experiences sufferers go through and the impact it has on mental health. She then provides a very helpful explanation of how a sufferer can accomplish this process of healing.

In this, her July article, Breaking the patterns of shame, Crissan expounds in a very clear and easy to follow manner how shame and guilt can shape our lives in such an adverse manner,

Shame is an emotion that can become very heavy. People who feel ashamed might feel like they have broken moral and social laws, and like they have disappointed themselves and others. As a result, they create a negative self-image, they feel powerless, worthless and isolated. Even though shame can have a positive function in society, for sufferers of a malodor condition the continuous experience of shame can be very harmful. It becomes toxic and they may develop a shame-based identity. (Bradshaw, 2006).

Crissan explains just how deeply shame affects us,

Shame and guilt are often mixed and misunderstood. The simplest way to explain the difference is Shame- “I’m wrong, unworthy” and Guilt- “I did something wrong”. So the difference is in “being” and “doing”.

We are most grateful to Crissan for providing us with an action plan that is aimed at helping us grab a hold of this driving force and conquer it. In the process, we become more empowered in our lives as we move forward toward pursuing proper treatment for the odor/PATM condition.

As a community which is very heavily laden with so much shame, we owe so much to Crissan for having taken a significant amount of her time to prepare this paper for us. Her genuine concern for the well-being of each member of our community is so present in everything she steadfastly does for us. As a fellow TMAU sufferer, Crissan understands the depth of injury these conditions cause, and she has dedicated herself to help sufferers regain control of the mental health and their lives. For this, we thank you, Crissan from the bottom of our hearts.


María de la Torre
Founder and Executive Director

A Public Charity
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