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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, July 10, 2019

Testimonial: Case of dental decay below amalgam

This post is made at the request of a sufferer with uncontrollable halitosis for 40 years. He would like to share this with the whole MEBO international community.

A long-time member of our community has been struggling for 40 years with uncontrollable halitosis. Even though he was able to reduce his odor symptoms with healthy eating, avoiding junk food and processed foods, foods with added hormones and antibiotics, reduced red meat, etc., he found that his halitosis was persistent. There was nothing he could do to completely eliminate it. His frequent visits a year to his dentist for cleanings still didn't resolve the problem.

Out of sheer desperation, he asked his dentist to please remove the amalgam in his teeth, one at a time. After much discussion, his dentist consented. After removing the first one, she found that he had dental decay below the amalgam. It was very odorous. She cleaned it and treated it with antibiotics. Afterwards, she replaced the metal filling with non-amalgam filling. His halitosis immediately went away, after 40 years, and has never returned. The only positive about his 40 years experience is that he has learned to eat healthy and he enjoys his diet and health.

According to the American Dental Association article, "When a filling needs to be replaced"

[an old filling] intended to replace tooth structure lost to decay. Dental fillings may last many years; however, eventually all fillings need to be replaced. Constant assault from eating and drinking, or stress from clenching or grinding, eventually may cause a dental filling to fail. Bacteria cause tooth decay.

Perhaps haltosis sufferers should consult with their dentist the pros and cons of filling replacements, even when the tooth and gums appear to be healthy. This was the case of the sufferer who is sharing his story with us, and there was decay under his amalgam.


María de la Torre
Founder and Executive Director

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