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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Wednesday, August 7, 2019

MEBO-Ubiome study NCT03582826 : survey and TMA

Prof Irene Gabashvili, PhD, MEBO Scientific Director
and longtime friend of MEBO, is overseeing the Ubiome-MEBO study as the Principal Investigator.

Study # : NCT03582826
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)

Currently Prof Irene is looking over the results.
Prof Irene currently does not have the actual 'numbers' from Ubiome.
She is looking at the survey results.

Latest update on the participant numbers :
Recruited: 110 participants
Participated in the study (at least partially): 74
Submitted 3 or more samples: 48
Submitted 2 samples: 13
Submitted 1 sample: 13
Study is closed but participants can send in any samples not sent.

In this post ...
Prof Irene writes about ...
Microbiome and TMA metabolism (based on the Quality of Life (QoL) survey).

Irene has her own company : Aurametrix.
You can see the full post in the Aurametrix blog
Read the full post here :  Microbiome and TMA metabolism

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A EURORDIS and NORD Member Organization

1 comments:

annomous said...

I HAVE PRETTY MUCH HEALED MYSELF FROM MY TMAU...ITS NOT COMPLETELY GONE, BUT I HAVE SO MANY GOOD DAYS, AND PEOPLE ARE NO LONGER ALERGIC TO ME, AND I DID IT ALL BY HEALING THE LINNING OF MY GUT, LEAKY GUT, AND REMOVING THE GUT BIOFILM THAT ATTACHES ITSELF TO THE GUT BACTERIA THAT MAKES IT IMPOSSIBLE TO REMOVE UNLESS U REMOVE THE BIOFILM FIRST....HEAL YOUR GUT, GET RID OF THE BIOFILM, AND YOU HAVE PRETTY MUCH FOUND THE CAUSE OF YOUR BODY ODOR...ITS TRAPPED INSIDE OF THE BIOFILM...GO FIGURE.....WE AS TMAUERS ARE GOING TO BE THE ONES TO CURE OURSELVES BEFORE ANY

Aug 7, 2019, 9:18:00 PM
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