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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Thursday, October 10, 2019

UK TMAU meeting with Prof Liz Shephard : London 19 Oct

MEBO UK organizer Karen James has this message about a London meeting for TMAU people :


St Mary's Hospital Meeting in London, UK
SATURDAY 19TH OCTOBER from 11am until 1pm.

Please keep this date free if you can be in London because some specialists, including Prof Elizabeth Shephard, and Dr Azara Janmohamed , have agreed to give up their Saturday morning to have a meeting with us at :

St Mary's Hospital
SMCA Clinical Lecture Theatre,
Level 2,
Cambridge Wing,
Praed Street,
London W2 1NY

It would be useful to have an idea of who is attending via email :
karen.james@meboresearch.org.

Everybody is welcome to come to the meeting.
Please call if you can't find us: 07505 590972
At 11am, however, I will turn the phone off.

Please note that no recording (audio or visual) is permitted. I will write a summary of main points for those who can't attend.

One focus of the meeting may be discussing the need for a more comprehensive, useful test. I hope that many odour sufferers will be able to attend this meeting as large numbers of us would demonstrate our commitment to moving things forward.


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A EURORDIS and NORD Member Organization

1 comments:

Anonymous said...

Please also discuss how to get hold of a research grant to treat this horrible condition.

Oct 10, 2019, 8:51:00 PM
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