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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Tuesday, May 12, 2020

4 SelenBP1 variants in Halitosis Study

2017 paper by Prof Ron Wevers et al ...
Said a gene caused a type of genetic Metabolic Halitosis.
gene : SELENBP1

Prof Wevers et al suggested 4 SELENBP1 variants may explain this type of Metabolic Halitosis

The paper is paywalled, but it is believed the 4 variants are :

Rs1357490520        GG
Rs1553204840        CC
Rs1553204817        GG
Rs758495626          GG

If you have DNA exome/genome/snp results, you might be able to check for these variants

23andme (a snp test) lists SELENBP1,
but looks like it does not list these variants.
Only 23andme testers can see the link :
23andme site: or you can search the rs numbers

exome/genome tests should in theory list them

Radboud Uni Ron Wevers article

An uneducated opinion on SELENBP1 in the METABOLIC MALODOR spectrum
Some may feel given FMO3 wide use as an oxidizer, it is perhaps seen as still the most obvious type of metabolic malodor, but greatly underestimated.
SELENBP1 may turn out to be more a rarer niche type (?), but this could be very wrong (especially the 'rare' notion) !

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