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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Friday, September 25, 2020

buying Fluxovas worldwide

Fluxovas is marketed as reducing TMAO levels, and so hopefully Trimethylamine too (studies may be done).
Created by a lab at University of Naples, it has been on sale for about 1 year.

People interested in buying Fluxovas, here are the brief details we know of how to purchase so far :

1. The RRP seems to be 26 Euros (inc tax ? ... plus shipping).
A number of sites sell it cheaper, but the price seems to change.
Last week 1 site sold for 13.5 euros, but is now 16.8 euros.

2. Currently it seems Italian online pharmacy sites are the only current sellers, but there seems to be quite a few to pick from.
Its very likely many will ship to many countries worldwide.
Try a google search of Fluxovas.

3. The Naples Uni lab suggested this online retailer :
(not sure why yet, though the price is good currently)

For further informations email us at benessere@farcomed, we can deliver fluxovas in Usa and other countries.

4. It has been spotted on ebay (UK), for around 30 euros.
This is probably Italian pharmacy sellers.
No sign of it yet on Amazon.

Italian price-comparison site for FLUXOVAS
(  note : the price varies and changes frequently.
RRP seems to be 26euros )  


 

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A EURORDIS and NORD Member Organization

6 comments:

Anonymous said...

Não estão vendendo para o Brasil...é uma pena.

Sep 25, 2020, 9:55:00 PM
Anonymous said...

It seems these pills are derived from Grapes - The number one ingredient listed as Vitis vinifera. I was just wondering, if i were to buy just grape supplements from a store here in the US, would the effects be the same? I suppose the other ingredient that is important is the polyethylene glycol (miralax) - maybe buy that separately? Just trying to consider options that are more easily accessible here in the US.

Sep 26, 2020, 10:28:00 PM
Anonymous said...

I also. have been wondering if it is similar. to grapeseed extract. It seems that if you combined resveratrol with grapeseed extract you would have the nearly all the ingredients. Then just add a few from other sources. The Synergy Company sells a high quality grape seed extract.

Sep 27, 2020, 11:01:00 PM
pdag said...

Please let us know if the ingredients of resveratrol with combination of grapeseed extract is all we need then how many months do we need to take it?
I am in canada and the problem is it's not easy to order every month and it will be expensive.....

Please let us know all the details....I hope this can cure tmau I dont want to be bullied all my life....

Sep 29, 2020, 6:55:00 PM
Unknown said...

Hola cómo puedo obtener fluxovas soy de México

Oct 4, 2020, 4:57:00 PM
Anonymous said...

I bought 3 months worth and took a triple dose for 2 weeks and can say they have zero effect. The study says it stops tma from being oxidized as a possible action. I think the mechanism is unclear to them but if that were true, this product would only induce the very condition we have. We effectively are also incapable of oxidizing tma which is why is is present in our urine (U) in TMAU.

Nov 12, 2020, 4:29:00 AM
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