Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Labels

March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Thursday, April 15, 2021

Google stopping email subscription service

Google is stopping its Blogger email subscription service (via feedburner) in June.

This means readers signed up to the MEBO Blog email subscription service will no longer get new post email notifications after around June.
It's hard to understand this decision. They also done away with Youtube email sub service last August.

So unfortunately, those with the email sub service (around 470 currently) will no longer be notified of new posts.

We will let you know of any other ideas on this subject. 

get New Posts by EMAIL : Enter your email address :


A EURORDIS and NORD Member Organization

4 comments:

Anonymous said...

I believed the covid vaccine used technology to hijack mRNA and send protein building intructions directly to the cells, Bypassing the DNA and gene.

Could this technology be used to bypass bad genes and send fmo3 instructions directly to the cells or were it needs to be produced?





EdG

Apr 16, 2021, 2:13:00 PM
Nina said...

A useful overview of Feedburner alternatives is https://feedburner-alternatives.com. It might help you figure out the next steps.

Apr 17, 2021, 8:32:00 AM
blogcontributor2 said...

thanks Nina. Mailchimp may be an alternative.

Apr 17, 2021, 9:26:00 AM
blogcontributor2 said...

EdG ... very interesting. mrna may be an answer. there is also crispr and base-editing which are all developing fast. A guess is that a FMO3 cure may be on the cards in 10 years or less, as well as for most genetic disorders.

Apr 17, 2021, 9:28:00 AM
Post a Comment