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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, April 15, 2021

Google stopping email subscription service

Google is stopping its Blogger email subscription service (via feedburner) in June.

This means readers signed up to the MEBO Blog email subscription service will no longer get new post email notifications after around June.
It's hard to understand this decision. They also done away with Youtube email sub service last August.

So unfortunately, those with the email sub service (around 470 currently) will no longer be notified of new posts.

We will let you know of any other ideas on this subject. 

get New Posts by EMAIL : Enter your email address :

A EURORDIS and NORD Member Organization


Anonymous said...

I believed the covid vaccine used technology to hijack mRNA and send protein building intructions directly to the cells, Bypassing the DNA and gene.

Could this technology be used to bypass bad genes and send fmo3 instructions directly to the cells or were it needs to be produced?


Apr 16, 2021, 2:13:00 PM
Nina said...

A useful overview of Feedburner alternatives is It might help you figure out the next steps.

Apr 17, 2021, 8:34:00 AM
blogcontributor2 said...

thanks Nina. Mailchimp may be an alternative.

Apr 17, 2021, 9:26:00 AM
blogcontributor2 said...

EdG ... very interesting. mrna may be an answer. there is also crispr and base-editing which are all developing fast. A guess is that a FMO3 cure may be on the cards in 10 years or less, as well as for most genetic disorders.

Apr 17, 2021, 9:28:00 AM
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