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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Sunday, April 11, 2021

MEBO Research study, reaction to COVID vaccines

Our MEBO Scientific Director, Irene Gabashvili, PhD., has registered a new study for the MEBO community with
ClinicalTrials.gov.  

Official Title of the Study is "A Phenotypic Study of Safety, Tolerability, Reactogenicity, Immunogenicity, and Virus Shedding Potential of Emergency-Use-Authorized Vaccines Against COVID-19".  The study will focus on understanding the effects of COVID and the vaccines on people with odor conditions compared to people who don't have odor conditions. Questions like, how a COVID vaccine affect odor levels are addressed. This might provide a key to point out possible differences in metabolism and/or gut microbiota between sufferers and non-sufferers' reactions to COVID & vaccines. 


Brief Summary:

During the study, members of different neighborhood and digital communities will be followed post COVID-19 vaccination. 

Injection-site (local) and systemic reaction data will be assessed on vaccination day and afterwards using either web surveys or personal communication, depending on study participant preference. 

Hypothesis to be tested is the safety profile and the magnitude and durability of immune responses to the COVID-19 vaccines as well as the adverse reactions depend on health conditions, metabolism and microbiomes.

The study will focus on understanding the effects of COVID and the vaccines on people with odor conditions compared to people who don't have odor conditions.
We are currently waiting for the study approval by the MEBO Independent Review Board (IRB) before commencing. As soon as it is approved, MEBO will inform on the procedures to take for anyone interested in being a study participant.

For more information, see the following post Irene made in Aurametrix:




Vaccine to cure body odor? 


There could be a vaccine for everything. Scientists are working on personal vaccines, vaccines reducing body weight or narcotic dependence, vaccines for just about anything. Can there be a vaccine improving body odor? Certainly, and it could target not only bacteria (in body crevices) worsening odor, but also molecules responsible for odor.

This would be a very complex task, however, as there is still a lot we don't understand. For example, if metabolism and microbiomes leading to body odor cause similar reactions to already existing vaccines...

What is missing? The ability to systematically analyze these reactions in different health and neighborhood communities. We started such a study in one neighborhood community and would like to also conduct it in the MEBO/PATM communities. We are also opening it to MEBO friends and family - asking them to indicate their relationship with MEBO/PATM in the comment section of the survey.

Anyone interested in participating in this study once we receive approval from the MEBO IRB, mau email me at maria@meboresearch.org, and ask for your MEBO ID# so that the privacy of your identity will be protected throughout the study.

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)



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A EURORDIS and NORD Member Organization

1 comments:

Anonymous said...

This will be useful. I recently got a first dose vaccination and experienced drastic changes in odor conditions, among other side effects. (There was choline in the vaccination formula. )

Also, just having had Covid-19, I could write an essay on the number of changes I experienced in metabolism and ability to process different foods (eggs, chocolate, etc.)

Covid-19 changes your heart rate and body temperature continually--you never know if you'll be hot or cold, calm or hyper. So, sign me up!

Apr 14, 2021, 7:52:00 PM
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