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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, December 5, 2022

Spanish Dr wants TMAU volunteers to try anti-TMAU 'fragrance'

Beatriz Mínguez is a young pediatrician working in the Gastroenterology, Hepatology and Nutrition Service of the Hospital Sant Joan de Déu in Barcelona. She is one of the protagonists of this story that will change the lives of people suffering from fish smell syndrome.. In fact, it has already changed the lives of several of his patients, two children, and a few volunteers – a teenager and three adults – who two summers ago signed up for a pioneering and collaborative project between the aforementioned hospital center. and the multinational perfume company Eurofragance, present in more than 60 countries

Specifically, they have developed a body lotion in cream with 1% fragrance, an ‘eau de toilette’. with 5% fragrance and a body serum with 2% fragrance. With the latter, greater fragrance retention and good moisturization is achieved, in addition to ease of application.

Mínguez recalls that it is are still looking for volunteers in which to test the effectiveness of the products, and that all those affected can get in touch via the following email:

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A EURORDIS and NORD Member Organization


Anonymous said...

has anyone received a response?

Dec 6, 2022, 4:43:00 PM
Anonymous said...

not that I know of

Dec 7, 2022, 5:48:00 AM
Anonymous said...

What happened to Trinzyme in London that came out with a similar idea several years ago? Wasn't their
cream based on citrus and green tea fragrances? Would drining green tea with lemon all day long
create a similar result?

Dec 9, 2022, 12:22:00 AM
Anonymous said...

Remember Trinzume, a company in London that created a similar cream with citrus and green tea fragrance?
What happened to that solution?

Also, maybe drinking green tea with lemon juice all day would help. Worth a try.

Dec 9, 2022, 12:26:00 AM
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