Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

MEBO Private Facebook Group
to join : contact
Ubiome Gut : 10% OFF
Join/Watch the weekly
TMAU UP Podcasts

Videos : TMAU latest

MEBO Map Testing & Meetups

Full details :
want listed ? contact
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14



Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

Sunday, January 24, 2010

Hello Mystery Diagnosis TMAU viewers

Did you just watch about TMAU
on Mystery Diagnosis ?
Hello everyone who has just watched brave Cheryl Marshall's TMAU story on Mystery Diagnosis. The video was on youtube but has sadly been removed. You may be surprised to find out that you are far from being alone. Welcome to the community. We are a blog about systemic body odors; especially trimethlyaminuria, which many of our readers have. Currently there are very few testers for this disorder, and 99.9% of MD's will be unaware of it. Stay around to learn more about the problem and meet the online body odor community. We are all in the same boat and together we can learn to organize ourselves into a powerful lobbying group to get research into systemic body odors. An ideal goal would be to get the NIH to open an International Body Odor and Halitosis research center and clinic.

In the meantime here is some brief information :

Trimethylaminuria information on our MeBO Research website
ABC Primetime TV video about a TMAU case
Main online TMAU forum

Testing for TMAU :
Normally there were 3 or 4 USA TMAU testers, but currently there is only one known : Arkansas Childrens Hospital

Others associated with TMAU but currently not testing :
Dr Paul Fennessey at Denver University of Colorado Health Science Center
Monell Chemical Senses Center
McGill University Health Centre - Montreal Children's Hospital

If you have any ideas how we can get society to recognise the commonness of this problem and start research, please let us know. Welcome.


Post a Comment