Join/Watch the weekly
TMAU UP Podcasts

MEBO Private Facebook Group
to join : contact
maria.delatorre@meboresearch.org

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org

MEBO TMAU urine test

MEBO Research
TMAU Urine Test
United States only
PROGRAM IS PERMANENTLY SUSPENDED AS OF 2 MAY 2017

Click here for
REQUISITION FORM
Incomplete applications
will NOT be processed

SEE UPDATES HERE

1
test
$150 plus
shipping costs
2
tests
$250 plus
shipping costs

TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please.

Test analysis performed in batches of 20 or more

DATE: 2 MAY 2017
Currently on : PROGRAM IS TEMPORARILY SUSPENDED

Samples analyzed since June 2012 :
352
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

Friday, September 21, 2012

TMAU/FMO3 Webinar this Sunday 2pm EST

Sunday 23rd September at 7pm UK time (2pm EST ... check your timezone)
6pm Greenwich Meantime : Check GMT time here : GMT current time
Trimethylaminuria/FMO3 webinar with guest speakers :
Professor Elizabeth Shephard & Professor Ian Phillips

(veteran researchers of FMO3 enzyme and trimethylaminuria)

authors of :
NIH Gene review entry for TMAU
part-authors of TMAU clinical utility genecard

Slideshow presentation : FMO3 : bugs,genes and drugs

Hosted by : Rob Pleticha of Eurordis and rareconnect.org
A joint-initiative between rareconnect and TMAU/FMO3 advocates

To take place in the rareconnect.org webinar room (flashplayer needed) : Click here to go to the Eurordis Webinar room

TMAU/FMO3 webinar 23rd Sept : will you attend ?

Everyone Welcome ! To the first of a series of webinars based around trimethylaminuria but moreso based around the enzyme that oxidizes trimethylamine and 1,000's of other malodorous compounds : Flavin containing mono-oxygenase enzyme isoform 3 (FMO3). Over the next few months it is hoped we can get a number of experts/researchers/clinicians of FMO3 to speak in the rareconnect webninar room. We are delighted and honored that our first guest speakers are the veteran FMO3/TMAU researchers and experts from London : Professors Ian Phillips and Elizabeth Shephard. They will provide an in-depth slideshow lecture on FMO3/TMAU and will be available for questions from the audience.

 Who is the webinar for ? 
The webinar is for everyone in the malodor community but particularly those who feel they have a metabolic malodor issue that may possibly be due to overload of FMO3 enzyme. But everyone is welcome to pop in and listen. You can even ask questions if you want (by text or maybe by audio or webcam)

Why only 50 places available in the room ?
It is standard practice to take a license out from Adobe Connect for a number of people per room at anytime. The limit in this room is 50 people at anytime. Hopefully it will not be an issue but if it is then long-term hopefully an answer will be found.

Webinar will be recorded and posted on youtube :
The webinar will be recorded and posted on youtube afterwards so that everyone; sufferers and others interested, can view it afterwards. The first webinar had sufferer Karen as a guest and you can hear her speech here : Karen on TMAU

If privacy is an issue :
If you are concerned about privacy, you can use a username for the room. There is no need to use your real name. Audience members cannot be seen and you do not need a webcam or mic to listen in. Alternatively if you are not concerned about privacy you may be able to ask questions by audio or video as long as the technology holds up (this is our first major webinar so we will be seeing how the room copes with so many visitors).

Check the timezone :
Being fully on the internet, everyone worldwide can join. It is scheduled for 7pm UK time which will also be 6pm Greenwich Mean Time. Look out for any changing local time zones over the weekend etc. Everyone is welcome.

A special thanks to Rob Pleticha at rareconnect.org and Eurordis for hosting the event and making it possible, and for long-time friends of the community Professor's Phillips and Shephard for making it possible for us to have guest speakers ! Let's hope this webinar acts as a template to show health-disorder communities how webinars can unite them, help create networks, and further their causes.

About Professor Shephard : Professor of molecular biology. Based in University College, London. Link to university page of Professor Shephard

About Professor Phillips : Professor of molecular biology at Queen Mary University, London Link to university page for Professor Phillips


About Rob Pleticha and rareconnect.org

MEBO Research

1 comments:

Anonymous said...

thank to all that participated and set this up . Awesome . Look forward to the next !!

Sep 23, 2012, 6:41:00 PM
Post a Comment