Join NORD and MEBO Research in Opposing Budget Cuts

PROTECT RESEARCH SUPPORT IN THE UNITED STATES
STOP AN 8 PERCENT CUT OF RESEARCH GRANTS!

Under the Budget Control Act of 2011, there is a possibility of an across-the-board funding cuts of approximately 8 percent that could be imposed upon NIH, FDA, and other federal agencies in January 2013. CONGRESS HAS NOT YET REACHED AN AGREEMENT ON A BUDGET DEFICIT REDUCTION PLAN, AND YOU CAN MAKE A DIFFERENCE! It is up to us to let them know that we oppose any budget cuts resulting in the loss of ability to fund new research grants or reduce commitment to existing grants.

The cuts would slice $2.5 billion from a $30 billion budget, resulting in the loss of the ability to fund about 2,300 new grants or reduced commitment to existing grants.

Last week, the White House Office of Budget and Management (OMB) released a report on the possible effects of these funding cuts, known as "sequestration", on federal agencies. The cuts could result in the loss of 1,200 FTEs at FDA alone. They could negate much of the anticipated benefit from this summer's FDA Safety and Innovation Act.

At NIH, the result would be equally devastating. The cuts would slice $2.5 billion from a $30 billion budget, resulting in the loss of the ability to fund about 2,300 new grants or reduced commitment to existing grants.

Please visit this site,
read NORD's letter,
personalize it,
and submit it online to your elected officials.

PROTECT FEDERAL SUPPORT FOR RARE DISEASES

Support a Balanced Approach to Deficit Reduction
As part of the Budget Control Act of 2011, a budget cut of between 8.5% and 10% of all Federal programs is to take effect at the end of this year. This includes all research funding at NIH, and all regulatory science activities at the FDA, including those made possible by user fees.
Take action now to support a balanced approach to deficit reduction and let your elected officials know that Federal support for rare diseases is important to you.

See NORD'S Alert for additional information

In recent weeks, NORD has been meeting with other organizations concerned about these potential cuts, including the Coalition for Health Funding (http://publichealthfunding.org). It is our fervent hope that Congress and the President will reach agreement on a deficit reduction plan before January so that the cuts won't be implemented.

But in the meantime, we encourage you to submit a letter to your elected officials through NORD's Legislative Action Center to let your elected officials know that Non-Defense Discretionary (NDD) programs, including medical and scientific research, education, public health and more, have already borne more than their fair share of responsibility for deficit reduction.

We encourage you to personalize your letter by including information about how a rare disease has affected you or your family.

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization