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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Tuesday, September 18, 2012

Join NORD and MEBO Research in Opposing Budget Cuts


Under the Budget Control Act of 2011, there is a possibility of an across-the-board funding cuts of approximately 8 percent that could be imposed upon NIH, FDA, and other federal agencies in January 2013. CONGRESS HAS NOT YET REACHED AN AGREEMENT ON A BUDGET DEFICIT REDUCTION PLAN, AND YOU CAN MAKE A DIFFERENCE! It is up to us to let them know that we oppose any budget cuts resulting in the loss of ability to fund new research grants or reduce commitment to existing grants.

The cuts would slice $2.5 billion from a $30 billion budget, resulting in the loss of the ability to fund about 2,300 new grants or reduced commitment to existing grants.
Last week, the White House Office of Budget and Management (OMB) released a report on the possible effects of these funding cuts, known as "sequestration", on federal agencies. The cuts could result in the loss of 1,200 FTEs at FDA alone. They could negate much of the anticipated benefit from this summer's FDA Safety and Innovation Act.

At NIH, the result would be equally devastating. The cuts would slice $2.5 billion from a $30 billion budget, resulting in the loss of the ability to fund about 2,300 new grants or reduced commitment to existing grants.


Support a Balanced Approach to Deficit Reduction

As part of the Budget Control Act of 2011, a budget cut of between 8.5% and 10% of all Federal programs is to take effect at the end of this year. This includes all research funding at NIH, and all regulatory science activities at the FDA, including those made possible by user fees.
Take action now to support a balanced approach to deficit reduction and let your elected officials know that Federal support for rare diseases is important to you.

See NORD'S Alert for additional information

In recent weeks, NORD has been meeting with other organizations concerned about these potential cuts, including the Coalition for Health Funding ( It is our fervent hope that Congress and the President will reach agreement on a deficit reduction plan before January so that the cuts won't be implemented.

But in the meantime, we encourage you to submit a letter to your elected officials through NORD's Legislative Action Center to let your elected officials know that Non-Defense Discretionary (NDD) programs, including medical and scientific research, education, public health and more, have already borne more than their fair share of responsibility for deficit reduction.

We encourage you to personalize your letter by including information about how a rare disease has affected you or your family.


María de la Torre
Founder and Executive Director

A Public Charity
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